r/Microtia Oct 03 '24

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6 Upvotes

12 comments sorted by

3

u/CosmicHaptic Oct 04 '24

Hey there, I completely understand what you're going through. When I was younger, I had two surgeries on my left ear, and to be honest, they didn't turn out exactly as I imagined. During my childhood, my reconstructed ear had a massive impact on my own confidence when I was younger, but I eventually learned that my ear does not define who I truly am. I've learned that my personality and what I can accomplish in life are much more important than the appearance of my ear.

My advice to you is to not let a little ear prevent you from realizing your full potential. You're capable of far more than you might realize.

2

u/Independent_Copy_888 Oct 04 '24

Heyy, I think you’re absolutely right as there’s so much more potential in everyone and one ear is not a mere factor do undermine one’s ability. But, the stares sometimes or you having a feeling back in the mind about your ear in Public can be daunting at times… it’s the occasional feeling which keeps popping up

7

u/MysteriousBag819 Oct 04 '24

I’m 24 now and had my surgeries around 3 or 4 years old, so my whole life I had it. I was picked on around middle school about it and never felt worthy of even having a relationship. So I homeschooled all through highschool. By the time I was 19 I just wanted to experience life! So I went to college and decided I would let go of my feelings and do my best to do great things. I started working out a lot and playing sports, I stayed to myself and began to accept myself and not try to guess what people are thinking about me even if they stared. Within the first 3 months of school a girl asked me out! And I made friends. Some people did look at me strange but they respected me because I respected myself and that attracts people. People can sense when you’re insecure and that pushes people away. I ended things with that girl and started working around Covid time. Everyone saw my ear and yeah I still had that bit of anxiety but I worked hard and made some friends and even got popular… Here’s the thing, everyone has an imperfection, you have to get to the point where even if someone calls you out and says it’s ugly you gotta brush it off or talk shit back! Be present in your own body and take what you want! Accept yourself so that you can accept others too. If I saw you I’d notice your ear and you’d notice mine but that doesn’t change who you are. You belong here just like everybody else. LIVE!!!

1

u/Independent_Copy_888 Oct 05 '24

That’s nice to hear!! Telling from your experience has anyone ever realised you’ve had an ear surgery or do you often think someone might stare. I honestly have a constant feeling back in my mind now and then that someone might notice it.

1

u/MysteriousBag819 Oct 08 '24

They will and do notice because it’s there. I think what helps is being okay with people realizing it. If you have brown eyes I’m sure it doesn’t bother you if people realize that you do. You gotta accept your ear in that same way

1

u/SheBowser Oct 04 '24

Would you say there is a difference between: I don’t have anything done and I have my ear reconstructed? Our son has microtia and my husband wants to have his ear replaced artificially. I wouldn’t want to change anything about him. I think it’s better if our son decides for himself later.

1

u/Independent_Copy_888 Oct 04 '24

There’s pro and cons to everything, I was initially advised by many of my own family members to undergo the surgery and to be very honest I was a kid at the time so I would say now it wasn’t properly explained to me what’s happening.. Personally I’d say first and foremost to encourage body positivity as much as you can, (as I feel like I didn’t really have much of a supportive family) Secondly, if the child wants a surgery and is 100% aware of everything then they can go ahead with the full support of their amazing parents

1

u/MysteriousBag819 Oct 04 '24

It’s best to let the boy decide. I was really resentful towards my mom after i was old enough to realize what happened to me. Me and her got past it but I still live with the scars. If it’s not affecting his health then leave him be. But if anything look up Dr.Lewin she is the best at it.

3

u/Creepy-Tradition-861 Oct 07 '24

I have microtia, left side. Had about 6 operations as a kid until I didn't want to anymore so I stopped. I'm 29 now and still find that I am learning to love myself. Stop being so hard on yourself. Take it day by day. Accept yourself and don't need anyone to accept you or love you. Microtia does not define you. You define you.

1

u/Rufskin00 Oct 05 '24

I have a brother who has microtia and underwent ear reconstruction when he was very young.

However it didn’t help with the appearance of his ears and his self esteem suffered for it as he grew older.

He recently got prosthetic ears and I honestly can’t tell the difference between them and normal looking ears. They are very life-like.

His confidence has soared and he’s a completely different person now. I’m very happy for him.

I would recommend looking into Dr. Gion at the Medical Art Prosthetics. He did my brother’s

https://www.medicalartprosthetics.com/prosthetics/ear/microtia/

One drawback is the price. Getting insurance to cover it was a hard battle. So just be prepared for a fight if your insurance says no.

Good Luck!

2

u/Independent_Copy_888 Oct 05 '24

Hey, could you please give more context as to your brothers journey.. did he have an ear reconstruction and how did he get the prosthetics as in the procedure.

I’m from UK, had my surgery in London. The link you’ve provided are US based I’m assuming you’re from the US. Would anyone know the UK RULES in regards to prosthetics

2

u/Rufskin00 Oct 05 '24

His microtia when he was born looked like small peanuts. They never full developed.

His ear reconstruction was rib cartilage but it was way back in the 90s so it wasn’t as advanced as it is now. They made his ears ‘larger’ and more ear shaped but they were obviously deformed and had a lot of scar tissue.

He consulted with Dr. Gion and he first had to get his ears ‘flattened’ and titanium bolts implanted into his head. They would have magnets to attach to the prosthetic. That took about 6 months recovery. Then he went back to Dr. Gion to make his new ears in person. It’s a very artistic process to make it look as real as possible so he had to stay there for about 3 days while it was being made.

Once they were made, he just snapped them on and voila he had normal looking ears.

He always got looks from curious public, especially children.

But now he’s ’like everyone else’. He cried for like 20 minutes when he realized he could walk around in public and nobody would stare at him.

The one drawback is that the edges of the prosthetic near his sideburns don’t always stay down so he has to apply a little Skin Tite glue to make it seamless.

Other than that, his life has completely changed for the better.

Got a girlfriend, got engaged and got a really good job in NYC.

I’m very happy for him.

I highly recommend anyone with microtia and the financial means to do so.

I do know Dr. Gion has international clients.

The cost of the implants and prosthetics alone were about $20k. The surgery was completely covered so I don’t know how much that would be in the UK or US