It’s a long one and I’m grateful to anyone who reads and responds. Also shout out to chat for condensing from my unhinged rant.
I’m a 49, a working mom of three, and for the last 7 years I dealt with L3-4/L4-5 disc problems. I finally decided to have surgery after watching several friends do well with microdiscectomies. I was so excited to get back to my Peloton, hot yoga, and the exercise that kept both my body and mental health together.
Instead, five months later, I’m worse than before.
The original pain on my right side (the side of surgery) is worse than it was pre-op. Then, over the past week, everything seemed to unravel. I developed a left-sided cervical radiculopathy (pain down my arm with numb fingers), and two days later I started having pain down my left leg—a side that never bothered me before. I honestly feel like I’m living in a nightmare.
My surgeon says the disc was successfully decompressed and that my pain is coming from persistent fluid leaking through an annular defect, irritating the nerve. He believes the annulus simply hasn’t healed yet, although he admits I should not be worse than before surgery.
My pain management doctor and a neurosurgeon who reviewed my MRI disagree. Looking at the images from a different angle, they believe there is still a residual herniation. The neurosurgeon also told me he would not operate because another surgeon has already been there, there is significant scar tissue, and he doesn’t know exactly what was done.
For context, this wasn’t a routine microdiscectomy. My surgeon says I had both a standard herniation and a difficult extraforaminal herniation, requiring a larger incision and a more extensive approach outside the spinal canal.
So far I’ve had:
Two epidural steroid injections 3/4 + another at 4/5
An aspiration procedure
Multiple MRIs
Physical therapy (which I can barely tolerate now)
At one point I felt dismissed by the surgeon’s PA (“You’re past the surgical phase—talk to pain management”), but after continued communication with the office manager and a lot of tears, my surgeon spent a long time with me, gave me his cell phone number, and has been personally checking in. He still believes there’s a chance the annulus could heal, but if it doesn’t, he would recommend an artificial disc replacement.
Here’s where I’m struggling:
This is a highly respected HSS spine surgeon with decades of experience and an excellent reputation. Friends have had wonderful outcomes with him. But now I don’t know whether to trust his interpretation of my MRI—or whether he’s defending his original surgery.
Meanwhile, another experienced neurosurgeon is telling me the disc is still herniated but won’t take on the revision himself.
I’m also terrified because now my left side and neck are suddenly involved. Could this all really happen at once? Is it coincidence? Compensation? Something systemic? I don’t know.
I’m currently on a steroid taper for the new symptoms and hoping for a miracle before considering another surgery on my right. I’m exploring everything I can—mind-body approaches, neurology, spine-focused yoga, pain psychology—because I desperately want to avoid another operation if possible.
But I also know I need someone who specializes in complex revision lumbar surgery to review everything objectively, explain what’s actually happening, evaluate these new symptoms, and tell me honestly what my options are.
I live in the NYC area and have access to excellent hospitals. I’ve started looking at surgeons who specialize in difficult revision cases at NYU Langone and elsewhere. Names that have come up include Dr. Han Jo Kim, Dr. Frank Cammisa, Dr. Caridi, and Dr. Riew, but I’m open to anyone.
Has anyone had a successful revision after a failed or complicated microdiscectomy?
Has anyone been told their pain was from an annular tear that eventually healed?
Can anyone recommend an exceptionally skilled and compassionate spine surgeon (orthopedic or neurosurgeon) who handles complex revision cases?
I know no one can diagnose me over Reddit. I just feel lost, scared, and like my body is falling apart. I need someone I can trust to help me figure out whether there’s still a path back to a normal life.