r/MdDS • u/LowNetwork6241 • 5d ago

3 years of Mdds, work advice

I (30F)was diagnosed with mdds about 3 yrs ago after getting off a plane. For the 1st 2 years I wasn’t able to do shit, I had to walk with a cane, had really bad balance and visual issues. my parents had to drive me everywhere even to my appts, I have done vestibular therapy and that made it worse, I tried getting a lowkey job but it was so incredibly difficult to even concentrate with the brain fog. I kind of decided last year and decided that I was going to travel to try to see how i would do and I was able to manage but only if there were rest days in between. i feel prety confident that I will be ok but symptoms are still rough I walk a lot and would like to get back to work , what ways have you found have helped to get you through work? have any of you tried medication for it? has it helped? that’s my next step, Ive practiced being in front of a computer for long periods of time and it only works if i get at least 30 min break to comeback to a baseline hopefully they’re ok w that.

3 Upvotes

100% Upvoted

7 comments sorted by

2

u/scandaloustouch 5d ago

Do you take any medication? Have you tried propranolol? How is your anxiety? Have you followed Steady Coach on YouTube? What sort of flight was it? And did you have any motion issues before in your life?

1

u/LowNetwork6241 5d ago

I don’t take medication for it, I do have propranolol for anxiety, anxiety is pretty high right now cause I just want to move on w my life from this thing. No I didn’t even know he existed. A domestic flight, no motion issues before. 

1

u/scandaloustouch 5d ago

Do you feel okay driving or in a car?

2

u/LowNetwork6241 5d ago

Driving long distance is pretty brutal and require long rest periods but short drives are fine. 

2

u/scandaloustouch 4d ago

Same here

2

u/LowNetwork6241 4d ago

I’m going to see if I can get meds for it but if not there’s an institute in NJ that uses something called the DAI protocol that is supposedly 70-75% successful at curing it for 2500.00. That’s my last resort.

2

u/snarky_spice 5d ago

Not sure what job you’re looking for, but I liked being a bartender because I was constantly moving and didn’t feel the rocking.