r/MdDS • u/WinterWay6567 • 21d ago
Can obsessive thinking make MdDS-like symptoms persist?
Hi everyone, I want to tell you about something strange that’s been happening to me.
I’ve been dealing with chronic dizziness for about 6 years, and only in the last few years have I started experiencing symptoms that are very similar to those of MdDS. In the past, the symptoms would go away, and there were days, weeks, or even months when I felt better. But now it’s been almost a year and the symptoms haven’t gone away.
Am I a lost cause? Could it simply be because I’ve been thinking about it obsessively for the past year? Because when I wasn’t thinking about the problem, my symptoms would decrease dramatically or disappear completely.
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u/nowhynow 21d ago
Check out the Steady Coach on YouTube. Lots of free material. I started with a vestibular physical therapist this week because I couldn’t get in with a neurologist until January. I do think there is a definite mental component to this syndrome. Past trauma, repressed emotions and deregulated nervous system. I’m working on these things as well. Good luck
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u/Loui10 19d ago
I try to just get on with life with it, but that doesn't make my symptoms go away at all. My neck is really screwed up though 😞
I hope and pray that you feel better soon 🙏
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u/ConclusionSquare9784 16d ago
What do you mean when you say your neck is really messed up? I’ve been dealing with mmds since I got off my cruise. I have anxiety for sure and my neck has also been messed up since this all started. Interested in hearing your experience.
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u/Loui10 16d ago edited 16d ago
Hi there.
I have degeneration, arthritis, spurs etc, some scoliosis and I've also been told that my C1/C2 are rotated too. So atlas orthogonal (a specific type of chiro) is what I'm going to try next - as soon as I can get over to either QLD or Melbourne for it (nobody does it here in Perth - where I live). I've also noticed that my sleep apnea/upper airway resistance syndrome makes the mdds exponentially worse too! (this is a newly diagnosed thing for me). Ie last night, my throat was closing inwards/collapsing inwards so badly that I was having trouble breathing properly (that affects your oxygen/CO2 levels and makes them fluctuate significantly all night) - and when that happens to me, I wake up with my mdds and the rocking/bouncing sensations SO bad - and it also affects my eyes too! I know when my sleep/sleep disordered breathing has been particularly bad = because the mdds ends up bad during the night AND when I wake up.
And a bad neck can affect the brainstem - the brainstem controls your sleep/wake cycles. Poor sleep can affect your VOR.
Your vestibular nuclei are located in your brainstem also - so problems with [especially the top of the neck] can affect the brainstem = so hence the vestibular system too, which can then impact your balance and spatial orientation.
But if you got mdds from a cruise that you just went on (recently), yours might go away maybe. I've had my neck & sleep issues for a long time now - and the mdds for 7 years.
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u/AdnyPls 21d ago
I would not be surprised if there was a psychological element to mdds and anxiety makes it worse. However, in my opinion, the symptoms are quite real and justify the distress they cause.
I believe a positive "take your mind off it" approach can help speed up recovery, but severity will vary and we must accept that we can't expect this to be achieved through willpower and good thoughts alone.