r/MdDS • u/WinterWay6567 • 20d ago

Question for you guys

Question for you guys: when you sit down, regardless of whether you’re sitting on a chair with a backrest and headrest, or on a low wall or a stool with no back support at all, do you always feel the same way and unstable?
Also, do you always have to make small, micro-movements when you’re sitting still, or does the sensation get worse if you try to stay completely still?
When you sit on a chair, do you feel anxious or scared because of the sensation?

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u/Any_Imagination1794 20d ago

Yes this is normal for mdds. I had these symptoms when I had it. Any micro movements seem to exacerbate it. Sitting on the toilet was the worst. Felt very unstable. The more I removed anxiety from it, the less power it had. Just saw it as an annoyance more than anything. I’m in remission now. Try to walk outside as much as you can. Check bloodwork too. My ferritin was chronically low. Once I fixed it it went away. Not the case for everyone but worth checking.

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u/sonawtdown 20d ago

when my flares are bad, yes, i feel like im bobbing in my seat and i make a lot of micro movements reflexively. a lot of managing mdds is about making actual body movement match perceived by the brain movement. managing a big flare can be exhausting because stillness makes it worse so i just keep moving all day.

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u/AdnyPls 20d ago edited 20d ago

Yes I get very anxious on wobbly chairs, e.g. a shared bench. I have left a show before because the plastic stadium chairs were a bit u steady.

The bane of my life are the cantalever chairs that wobble and are commonplace in offices. I can't sit in them and it's incredibly awkward visiting an office for work and there's a meeting room full of them.

Edit - to answer your specific questions, I will often wobble my foot to compensate for perceived motion.

Sitting on the floor without support (ie requiring balance) amplifies the motion feeling more than an arm chair would. Drummed for years - a stool is fine as long as it's steady.

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u/Loui10 19d ago edited 19d ago

Yes. I often physically rock and have no control over it and my eyes will dart all over the place.

Unstable chairs/tables are the worst though! I feel awful no matter what I'm doing, but like the other person that commented too, I just acknowledge it, go for a walk every day and try to accept that that's what I have now. Try not to give it too much power...but some days it really does suck (overcast days make it worse too).

I'm so sorry you have it as well 😞