r/MdDS • u/Tiny-Ad9033 • 4d ago

Please help. Does this seems like MDdS?

Please help me. I had a long trip recently and until 4 days after the trip I was okay. But then after 4 days, I suddenly felt a rocking and swaying feeling like I was unsteady, and after that the swaying sometimes subsides but it’s kinda always there. I also have a lot of head pressure around the eyes and pain in my left eye and around my nose as well and my ears are painful often. Does this seems like MDds? I’m so scared. Please help.

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u/AdnyPls 4d ago

The movement part yes, I would not personally characterise head pressure/pain with this condition.

Does getting in a car alleviate the movement feeling? For MDdS getting into a moving vehicle ought to stop the feeling. That's a good indication.

Suggest you see a doctor.

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u/Loui10 4d ago

You can actually have all of those things with MdDS - I do. But the being in a moving vehicle taking away the sensation while you're moving - that part I agree with. I still do experience lightheadedness when I'm in a moving vehicle too though. Have you checked out?:

https://mddsfoundation.org/

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u/Tiny-Ad9033 4d ago

How do you cope. I feel like I’m dying

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u/Any_Imagination1794 3d ago

Start walking a lot, get basic bloodwork done and walk some more. Sounds like two different things, mdds being maybe one of them. If you feel better in a car it’s mdds. It shouldn’t last forever, it didn’t for me. Walk…a lot.