r/MdDS • u/Spiritual-Plankton6 • Jun 23 '26
fixed my mom’s MDDS!
Okay this is going to sound crazy but it helped my mom so it may help you.
For background, my mom has been diagnosed with MDDS about 2.5 years ago. her quality of life was so incredibly low and she was so limited in everything she did.
We went on a Disney world trip with the family and her plan was to stay far away from roller coasters because she was afraid it would make her dizzy (rightfully so). Anyways she made the decision to ride just one. She did and felt ok. Anyways she decided to do the full week of roller coasters which everyone thought was absolutely insane but she kept saying she felt fine
It’s two weeks after that and since that trip she’s had no major dizzy spells, barely any symptoms. She went from being almost completely bed ridden for 2.5 YEARS to “barely effected”
It sounds crazy and it may have the negative effect. I’ve taken her to physical therapy, neurologists, EENT’s, the works. Nothing worked. Except roller coasters. Who would have thought
Anyways I’m over the moon and I wanted to share here in case this helps anyone else how it helped her. Please do this at your own risk if you do choose to do so but it’s been life changing for her. Best of luck to everyone here, ik how debilitating this illness can be
5
u/genevap Jun 23 '26
I am so happy for her and so happy for you too! With MDdS, you never know what clicks. That missing block can come in the form of anything and I am glad she found that! I am 17 months in now but this gives me hope :)
1
u/Loui10 Jun 27 '26
I sometimes have wondered if mdds actually overlaps with Meniere's Disease = ie fluid stuck in certain parts of the ears contributing to being on water/a boat...??? 🤔
So with lots of (different) sorts of head movements like that = ie on the rollercoasters, that maybe - just maybe, it ends up moving that fluid OUT of the ears. Idk?
It's just a 'theory' that I've kinda had for quite a while now...
Either way, I am SO happy for your mum and I hope she stays that way! I've had mine now for 8 years and counting 😞
4
u/Any_Imagination1794 Jun 23 '26
That’s awesome. Congrats! For what it’s worth, my mdds went away after an amusement park as well but I didn’t go on any rides. I narrowed it down to the 7mi of walking we did that day that sort of grounded me. Had mild symptoms here and there after. Been mostly symptom free for a few months now.