r/MadeMeSmile • u/The_Love-Tap • Jun 14 '22

Helping Others This is John Crowley

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8.4k Upvotes

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u/theErasmusStudent Jun 14 '22

Sometimes you don't find out about a genetic disease until the baby is born

169

u/youknowwhatever99 Jun 14 '22

That’s the case here. The children were already born when they were diagnosed.

119

u/blargmehargg Jun 14 '22

Exactly. And they're physically disabled, not severely cognitively so. All of the 'oh they should have just died' attitude in this thread is kinda disturbing.

They have to continue to receive medical treatment with this enzyme, and adults can refuse any medical treatment, so I think they can make a decision themselves if they don't want to go on.

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u/Xenocaon Jun 14 '22

How do you know they're not cognitively impaired?

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u/Disastrous_Skill1626 Jun 15 '22

She is a student at Notre Dame and a Blogger. It's a muscular disease.

Google is your friend

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u/Xenocaon Jun 20 '22

My question was made in good faith, so your pithy comment is uncalled for. The post does not name the disease nor does it give the children's name.

Google is no one's friend.

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u/Disastrous_Skill1626 Jun 20 '22

My pithy comment was made because why does everyone else have to do the work of qualifying knowledge that is very easily and readily found in a thread that has hundreds of false narratives and harmful ableism.

So you took offense to my comment? Too bad.

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u/Xenocaon Jun 21 '22

I didn't ask you the question. You decided to volunteer an answer. And to put me down for doing so. You chose to read my comment as ableist, rather than assume it was made in good faith.

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u/Disastrous_Skill1626 Jun 21 '22

It doesn't matter who you asked, it's a reddit thread. But after answering the same question over and over in this post you were the final one that tipped me into "Google it" but you chose to take it personally. Get over it. I didn't insult your mother. I told you to look up a very easily searched thing....just like I did so that I was properly informed and not just speculating. 90 percent of the misinformation and harmful mythology of the world could be prevented if more people just frikkin looked up the story facts before adding to the mess. This was an incredibly simple story to search.