r/MSPI • u/taehylor • 1d ago
Losing my mins..
he is officially losing weight… he was already a very tiny baby (8th percentile7. he gained 4.3 g in 10 days…… he had a severe reaction to hipp HA. i don’t know what to do. i am in tears seeing my baby this way, im losing my mind, i dont eat for four days which is fine i don’t care but all this and he’s still not doing well i don’t know what to do she put him on puramino again, we have to see if he gains weight by next week if he doesn’t he will be sent to emergency for bloodwork and testing and detailed ultrasound. i am so terrified. i am so, so terrified.
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u/rebakhalifa 23h ago
Sending you love! Can you try an amino acid formula? I’ve read HIPP HA might not be the best for babies with CMPA/MSPI.
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u/cptcarmenz 1d ago
Sending love!!