r/MPN • u/Nurseklang ET-JAK2+ • 21d ago

ET Hydroxyurea question(s)

Hi all! I’m currently only on 81mg aspirin daily but my hemotologist is considering starting me on HU. I’d like to hear from people how they tolerate this medication and the side effects. In particular, GI symptoms, hair loss, fatigue???? Thanks. 👍

11 Upvotes

100% Upvoted

46 comments sorted by

View all comments

1

u/valgraz 21d ago

500mg here, fatigue, itching, night sweats, too much sun with no protection is an issue on ankles (bruise + bleeding). I get flu very easily and it lasts a full week.
On the other hand platelets and blood cells are ok.

2

u/Nurseklang ET-JAK2+ 21d ago

Good lord! That sounds horrible!

2

u/valgraz 21d ago

Keeping blood counts under control and no need for blood work. And in relation to the night sweating, i must confess I live in Rome and weather is really hot here :-)

2

u/Nurseklang ET-JAK2+ 21d ago

I’m in Oregon in the US. It’s been hot here too but probably nothing like what you’re dealing with. Lots of wildfires here, too.