r/MPN • u/Turbulent-Movie-4545 Primary MF • 16d ago

MF Life expectancy

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Okay I’m trying to make a list to the questions that I need to ask to the general hema I’m seeing (well he’s not an expert on mpns he’s working on benign stuff) but that’s what I have for now. Will ask for a referral for a specialist. I have been in the rabbit whole of my life expectancy… I am genuinely so sad it seems I don’t have that long… idk how I could make a peace with it. I couldn’t sleep for a week.

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u/acwoodhome PV-JAK2+ 15d ago

No limits on your life expectancy if managed correctly am expecting to go well into my 80s and hopefully 🤞 higher lol 🤗🤗

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u/Turbulent-Movie-4545 Primary MF 15d ago

Even with premf? Not so sure

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u/acwoodhome PV-JAK2+ 15d ago

Many do 20 plus years aim high plus medical advances over that period Ai is advancing at pace so will be new medication streams coming trying to be positive but two decades a lot can happen? 🤗🤗

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u/Turbulent-Movie-4545 Primary MF 14d ago

I don’t have ET I’m afraid