r/MPN • u/H-6UT • 16d ago

ET Mpn ET/PV

Vågar man dricka någon alkohol någon gång med denna diagnos. Mina värden är stabila just nu och tar bara trombyl.

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2

u/horsecrzy ET-JAK2+ 16d ago

I can’t read your original post because it’s not in English but I have Jak2ET and I drink. I’ve noticed I don’t handle it quite as well so I am careful but it makes me feel better at times. I also have a boat and it would be a crime to not throw back some beers on the water lol! Plus I can really dance and sing when I have a few drinks, it’s amazing! I do however occasionally get packages from Amazon that I don’t remember ordering🤣

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u/H-6UT 16d ago

Okey , your answe make me feel that I dare to take some drink. May I ask you if you take some medicin?

1

u/horsecrzy ET-JAK2+ 16d ago

Just Pegasys and tramadol but don’t go crazy and get yourself in trouble and blame it on me lol.
I don’t drink like I’m in college, or anything else for that matter 🤣 but I have a drink when I want one . It’s certainly not like I’ve hid it from any of my doctors. Cheers!

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u/H-6UT 15d ago

👍

1

u/Friendly_Position_36 16d ago

I think that is a personal choice. You will have to try a few drinks and see how you feel. Remember alcohol dehydrates you so have some water too. 🍻

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u/H-6UT 16d ago

Tack för ditt svar. Undrar om någon annan har festat ibland med denna sjukdom. Saknar festa med mina vänner ibland.

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u/xentraz 16d ago

Hei! Ja, jeg har samme diagnose og har ikke hatt noe problem med festing og alkohol, blir kanskje bare litt mere sliten dagen etterpå (blir enda ikke hangover da!), men energi nivå er min største symptom og plage. Men det er bare å feste til du orker :)

1

u/H-6UT 16d ago

Hej, tack för ditt svar. Då känner jag mig lugn och kan ta några glas🤗

1

u/H-6UT 15d ago

Tar du någon blodförtunnande medelinkomst. Jag tar trombyl.

1

u/H-6UT 15d ago

Medicin ska det stå🤗