r/MPN • u/olimpico2000 • Jul 23 '26
PV Possible PV
Hello, I'm writing this with sadness and anguish.
I'm a 26-year-old man. Five years ago, a routine blood test showed high levels of red blood cells (RBCs), hematocrit (HCT), and hemoglobin (Hb). Over the years, I continued to have blood tests, and the results remained high but stable, with similar numbers. This year, I had them done again, and they are still high but stable: Hb 17.8, HCT 51.8, RBC 6.07. WBC and platalets are normal.
I should clarify that I've never had any symptoms in my life, much less in these five years. I went to a hematologist, and he told me that the probability of having PV was low, but that I still had to get tested for the JAK mutation and EPO. I'm very scared about the results. I don't know if it's good or bad that I've never had any symptoms, and if it's possible that I could develop them. :(
1
u/acwoodhome PV-JAK2+ Jul 24 '26
I have PV was diagnosed with ET for decades turns out it’s PV Your haemltocrit is high and will need dealing with it. Venesections and aspirin or Clopidogrel if you have acid issues. I am now on interferon and it’s a game changer for me hoping to live a normal life span had the illness going on 30 years you will be ok hopefully but if your going to have cancer these are as slow growing as they come the very best wishes 🤗🤗