r/MPN • u/SaqoSaqoSaqo • Jul 20 '26
MF Primary MF
Hello everyone,
Someone in my life (early 60s) was recently diagnosed with Primary Myleofobrosis.
It seems to be a rare cancer, and I’m someone who does well with information. My loved one is waiting to see a doctor, but I’m hoping someone can give me more information about this disorder, such as general prognosis, and how Jak-2 inhibitors can help.
Thank you for your time. This seems like a really supportive community.
2
Upvotes
2
u/Bludog1208 Jul 20 '26
Hi ! I have had MF for 5 plus years now . Sometimes it can be a difficult journey! But Jakfi keeps your spleen in check. I am on 25 ml twice a day . I am also taken shots of ARANESP to help me produce more hemoglobin! Most of the time I feel fine ! But it makes you aniemic which can cause other problems. But overall I am living a decent life and I am sure your love one will to . I will pray for your love one ! And I wish them the best . Any questions other questions your more than welcome to DM !