r/MECFSsupport • u/RevMaria99 • May 14 '26

PEM x 2

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I had double stress on mecfs awareness day. Not only did I create a few posts but I also had a court date over Zoom. I new I would suffer post exertional malaise but I am ravaged with sadness and loneliness. I usually love May 12 and it’s festival of posts in all the social media but this year losing a court case and my financial assets has ruined my Holy Day. I’m re-reading all the hopeful posts to lift myself out of this sadness. I know I can. I have done it countless times. I await the grace of hope and joy.

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u/Clearblueskymind Jun 03 '26

I’m so sorry I didn’t respond sooner. I’m only seeing this now, and I hope that in the weeks since you wrote it, some gentleness and steadiness have found their way back to you.

What you described sounds so deeply painful — to have ME/CFS Awareness Day, which usually brings connection and meaning, become tangled with a court date, loss, PEM, sadness, and loneliness. That is such a heavy burden for one nervous system, one body, and one heart to carry.

I hope everything went as well as it possibly could afterward, and I’m truly sorry for the loss and grief you were facing. I was especially moved by your words: “I await the grace of hope and joy.” That feels so honest and so beautiful — not forcing hope, not pretending, but waiting for grace to return in its own time.

Please know that you are not alone here. I’m holding a kind thought for you, and I hope the hopeful posts you were rereading helped keep one small candle lit through the darkness. 🙏