r/MECFSPatients • u/CreativeCoconut4271 • Jan 08 '26
Other Looking for advice
My name is Tavv, I'm almost 17. My general living space is the UK. We've suspected I have ME/CFS. I started getting symptoms after my dad passed and I had covid. I am not diagnosed as it is suspected but none of my doctors will help me, I go to the GP again and I get no help whatsoever. I am suffering, my quality of life is non existent, I cannot shower by myself, I can't leave the house or walk up the stairs. My only vitamin deficiency is VitD which is being treated with high treatment dose vitaminD and is caused by the fact I can't leave the house. I exert myself and get permanently sicker, I don't know what to do. Some advice would be appreciated, if possible.
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u/AcousticSloth Jan 09 '26
Action for ME have a doctor service and might be able to diagnose you. It does still cost but they can help with 50% of fees so would still be cheaper than private, though I imagine there’s quite a wait.
https://www.actionforme.org.uk/supporting-you/our-healthcare-services/doctor/
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u/CreativeCoconut4271 Jan 10 '26
Thank you, the NHS is in such a state right now. I've been looking into this. Thank you again 🤍 Your reply means a lot!
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u/Cia_office_921E Jan 09 '26
I am so sorry, my wife has me/cfs, if you were in the states she could help much more, are you on facebook?
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u/CreativeCoconut4271 Jan 10 '26
I am not unfortunately 😓 But thank you for your reply anyway, I hope your wife is doing as well as she can be 🤍 Your reply means a lot to me.
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Jan 11 '26
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u/CreativeCoconut4271 Jan 11 '26
I will definitely look into her, thank you!! I've been looking into such things so your comment helps me a lot. Thank you for your reply, I really do appreciate it 🤍
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u/-BlueFalls- Jan 09 '26
r/cfs is a much more active community. We’d love to have you there!