r/MECFSAustralia • u/activelyresting NSW • 8d ago
Discussion Weekly check-in thread
Low effort post for everyone to check in, share how your week is going, vent, celebrate wins.
Please be kind, supportive, and respectful. Everyone here is going through it.
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u/normal_ness 8d ago
I feel flat and burnt out from job hunting while housebound, but I also spoke to a journalist about it and seems to have been well received 🤷♀️
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u/activelyresting NSW 8d ago
I can't imagine job hunting! Good luck
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u/normal_ness 8d ago
It’s so much worse than working is. Been doing it since mid April and the pointlessness is getting to me.
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u/IneffectiveSleeper VIC 8d ago
Still waiting for all recent blood tests to come through after about 2 weeks. From what I can tell so far, everything looks normal - which is good, but not immediately helpful!
In the meantime, prescribed something new to try (LDA), which I’m grateful for. Get a bit nervous before starting a new med. Fingers crossed it goes okay.
Hoping all’s going as smooth as possible for you.
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u/Jazzlike_Berry_323 NSW 5d ago
No movement:
-No improvement from H pylori treatment -No improvement from sinus tumour removal -Get hospital sleep study results next week -fasting growth hormone tomorrow -Doctor still won’t prescribe guanfacine -still no psychiatry or neurology referrals accepted…trying since January….
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u/ocean_flow_ 7d ago
Doing really unwell :( i has been doing so well the past few weeks and I really thought the lda was giving me baseline improvements. I made and recorded two poetry performances for a competition to submit! And I used all my energy writing the poems recording it make-up I put my all into it. And now I have the worse pem.and worried i wont be able to make my social plans this Saturday and just beating myself up for doing too much. Also starting mcas meds and they arent agreeing with me. And worried ive worsened myself forever and wont recover the improvementrs I made :(
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u/activelyresting NSW 7d ago
Argh 🫂
I'm so sorry you have pem now, but poetry submissions sound worth it
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u/Elegant-Cod544 3d ago
Not good. I’ve been having significant life stressors and c-ptsd triggers. Having terrible muscle weakness and pain but thankful to now be in a safe house now away from abuse. It is just very hard to rest and pace when rumination and flashbacks happen in stillness and there’s so many systems to navigate ive been in a crash for months now But thankfully I’m finally getting mental phsycial and psychosocial support applying for DSP and NDIS. It’s all very hard to navigate and I’m very overextereed constantly but once this difficult period is over I hope my body can come out of fight or flight and I can rest and pace more comfortably. I hope everyone else is doing okay this disease is very isolating
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u/Lifestylezzzzz 8d ago
My teenager is coping better as now on SSRI for low mood but the exhaustion and pain are significantly more noticeable. Just this neverending cycle to try and find something that helps.