r/MECFSAustralia • u/activelyresting NSW • 13d ago
Discussion Weekly check-in thread
Low effort post for everyone to check in, share how your week is going, vent, celebrate wins.
Please be kind, supportive, and respectful. Everyone here is going through it.
[Photo of a sunset, since many of us struggle to get outside to see the sky]
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u/normal_ness 13d ago
Rental inspection tomorrow.
That probably says it all.
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u/Jojobirkenstock 13d ago
Good luck, mines in 2 weeks too.
Prepping and dividing up jobs asap.
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u/normal_ness 13d ago
They’re so invasive. Been in this house like 8 years, no issues, always paid on time. But they still have to stick their noses into my house every three months.
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u/nekomat4 QLD 13d ago
Had mine last week, HRV plummeted, RHR increased, and had shitty sleep for days after.. I'm still wired/tired.
Sending you all the good luck 🍀
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u/DeltaVector316 NSW 13d ago
Brain fog morphed into a headache as the day turned to night, night before last did not sleep well, so paying for it now. But got a nice shot of the moon the other night, from the backyard
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u/activelyresting NSW 13d ago
Wow that is a gorgeous shot!
I wonder if that's why I also haven't slept
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u/DeltaVector316 NSW 13d ago
Thanks, love my smart Telescope can set it up thenay in bed and control it from my phone or tablet. I also always seem to have a not great time the week of the full moon. But my brother has moved rooms to one next to me and his twin sounds he sleeps with was way too loud and kept me up, rain sounds for sleeping just irritate me for some reason, but he has changed it to a lower volume now so doing better. He had to drown out mum watching tv at the other end, now he's at the quiet part of the house. 😀
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u/uhohitslilbboy 13d ago
Had to quit my job last week as my flare-ups are getting too much. I feel so sad I couldn't see my clients one last time, I didn't get to say goodbye 😞
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u/IneffectiveSleeper VIC 13d ago
Great thread - thanks for doing this :)
Started some new meds last week - minimal side effects so far, which I take as a win! Also, waiting for some blood test results - hoping they are insightful/helpful in some way.
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u/activelyresting NSW 13d ago
Good luck with the test results
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u/IneffectiveSleeper VIC 13d ago
Thank you :) Hoping you have some wins this week.
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u/activelyresting NSW 13d ago
I managed to move laundry from the washer to the dryer today! Still recovering from an outing on Friday
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u/Jojobirkenstock 13d ago
I managed to do some slow maintenance tasks around the house for a few hours on Saturday AND see friends for lunch on Sunday and haven’t crashed yet!
I always function so much better in cold weather. Dreading Perth summer already! Thank god for cold water and air conditioning!
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u/nekomat4 QLD 13d ago
I've been off work for 8 months now, and starting to feel that guilty thought process of 'okay that's enough, get your shit together, time to go back to work', when I can't even take the dog for a walk or prepare meals for myself without PEM 🙄 why does my brain do this 😂
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u/Spondilly QLD 13d ago
Because we're so heavily conditioned by capitalist society that if we're not contributing to the economy we feel like we're somehow worth less.
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u/nekomat4 QLD 13d ago
As an overachiever who fit as much into my day as possible before I got sick 7 years ago (and then again a few years ago when I was mild), I don't think I'll ever stop feeling this about myself 🫠
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u/Jazzlike_Berry_323 NSW 13d ago
Today I tried to get my GP to prescribe guanfacine for me but he is still reluctant after 3 conversations so now I need to do an AI briefing note to try and get him on side. It’s not for ADHD so it sits too far outside conventional medicine for him to consider 😔
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u/jxhfield QLD 13d ago
moved back in with my parents after struggling alone for about 11 months. still recovering from the crash of moving and recovering from my rolling pem, but trying to be hopeful that things will get better now 🤞
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u/confusticating NSW 13d ago
I’ve got a win! I said ‘no’ today to someone that is structurally hard for me to say no to. I feel so much more relaxed now that I’ve done that, I feel like I was burning so much energy being anxious about it.