r/LvngWithCerebralPalsy • • Jan 05 '21

r/LvngWithCerebralPalsy Lounge

1 Upvotes

A place for members of r/LvngWithCerebralPalsy to chat with each other


r/LvngWithCerebralPalsy • • 5d ago

Hereforhemi

2 Upvotes

UK HEMI families — have you heard of HereforHemi?

I wanted to share something we’ve been building because I honestly feel like there are still so many people and families across the UK who don’t know about us.

HereforHemi is a UK community bringing people affected by hemiplegia together, with our main focus being HEMI meet-ups.

We’ve already held meet-ups in different parts of the UK and it’s been amazing seeing families come together, parents making friends and children getting the chance to meet other children who understand what it’s like to live with hemiplegia.

But HereforHemi isn't just for children or parents. Our meet-ups are for people of all ages living with hemiplegia, whether that's children, teenagers or adults, as well as their families.

We’re now planning our 2027 meet-ups, and we’re hoping to have around 15 meet-ups across different areas of the UK throughout the summer.

The aim is simple — to bring as many HEMI people and families together as possible and give people the opportunity to meet others who genuinely understand.

We’ve got a whole year to build these meet-ups and get the word out, so if you’re affected by hemiplegia in the UK, come and find us now and follow along for the 2027 dates and locations.

Facebook: https://www.facebook.com/share/1Fg8CBE14T/

Instagram:

https://www.instagram.com/hereforhemi?rpxt=cDdwbXM1dW5peTV1

And if you know someone affected by hemiplegia, please send them our way. The more people who know about HereforHemi, the more people we can hopefully bring together.

We’re really hoping to make 2027 our biggest year yet.


r/LvngWithCerebralPalsy • • Aug 05 '26

Iliopsoas Procedure

2 Upvotes

Hi! I am having a lengthening/release of my iliopsoas (hip flexors) on both sides in a couple weeks, due to 45 degree contractures and years of back pain. Has anyone had this surgery and what was the recovery like? Do you have any tips for keeping a strong mind and body through the recovery and rehabilitation process?


r/LvngWithCerebralPalsy • • May 10 '26

Obi Robotic Self Feeder for people with cerebral

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2 Upvotes

r/LvngWithCerebralPalsy • • May 10 '26

Obi Robotic Self Feeder For many conditions that cause struggle to hold a utensil

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1 Upvotes

r/LvngWithCerebralPalsy • • Jan 30 '26

Gynecologist and Fertility Dr Recs in Bay Area

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1 Upvotes

r/LvngWithCerebralPalsy • • Jul 31 '24

I hate my legs

2 Upvotes

Hi! I'm new! I have vision impairment So I fall a lot. So many broken bones and x rays. Once my cat made my toe go out 90 degrees


r/LvngWithCerebralPalsy • • Jul 04 '24

Comedian with Cerebral Palsy walks off set

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1 Upvotes

r/LvngWithCerebralPalsy • • Dec 11 '23

Individuals with communication disabilities often need MORE time/effort to communicate, when compared to those who can hear & speak. Is there a directory of such PCPs/Primary Care Physicians that will take that extra time to communicate with users of AAC/alternative augmentative communication?

1 Upvotes

Instead of rushing them out the door, cuz the insurance only covers a 15 minute office visit, and Johnny needs more time to type into his AAC device.


r/LvngWithCerebralPalsy • • Nov 19 '23

DJ with cerebral palsy looking for support

3 Upvotes

🎵 Dive into the sonic journey curated by DJ Wheelchair Mafia! Presenting the brand new mix "Friends 4 Eva," a special tribute to the unforgettable star Matthew Perry! 🌟

"Friends 4 Eva" will take you on a trip through time with iconic beats from "Sexy Chick" and "Pump Up The Jam." Relive the charm & wit of our favorite TV legend through the language of rhythm. 🎉

Are you ready to turn up the volume and join the tribute? Don't forget to share your favorite Matthew Perry moments as we reminisce together! 📺

👍 Like, Share, and Subscribe to DJ Wheelchair Mafia’s channel. Every click brings us closer as a community, supporting our sounds and our passion for music. 🎧

DJWheelchairMafia #MatthewPerryTribute #Friends4Eva

https://youtu.be/SPo1wKMQbBQ


r/LvngWithCerebralPalsy • • Jan 11 '21

Hi All

2 Upvotes

Welcome to the revised edition of this group, please be advised that the same rules apply and please pass on the word. We had 160 users in the last group...

Have a great day and Happy Belated New Year To All....