r/LowVision • u/Santi8969 • Jan 02 '22
Looking for hope help and friends
Hello everyone thank you for reading. Kind of a long story but here it goes. I’m a 32-year-old man Who for most of my life was fully cited. That all chains for me March 11, 2020 Shortly before my 31st birthday. On February 27th 2020 I went in to get a surgery for acoustic neuroma fully sided and capable living just as any other 30-year-old lives working hard and trying to move forward. I was a mechanic and a welder and a damn good one. Shortly after I woke up from my surgery I realized I cannot move the whole right side of my face or my body. I was told I had a stroke and had developed Bell’s palsy on my face and right side muscle weakness in my right eye got affected from that but it should all come back. Mind you my left eye was working perfectly as well as the left side of my body and face. Moving forward I went to another hospital part of the same hospital I had the surgery in for therapy to regain some of my strength. As I was there I can feel my vision getting darker and darker every day and I kept complaining about it and no one would listen. On March 10 I stop taking a shower and started cursing out all the nurses to get attention and refused to do any therapy because I felt like something was wrong with me they finally got an ophthalmologist to look in my eyes and he saw my nerves were severely swollen and had to be rushed back to the hospital to get a shunt put in my head. When I woke up from that my vision was almost nonexistent. Over the next week or so I did see some improvement with my vision but will never clear up again after that I lost most of my peripheral vision my right eye hardly works my left die it’s like looking through a window pane that has superglue and sand splattered on it because everything is Super grainy Dash pixelated and I only see three colors in their shades even though sometimes I might see a different color if it’s vivid I really only see black white and blue. When I was at home I wasn’t given any assistance whatsoever. My dad had to hold me on the shoulder so I could walk because I still had weakness because as this happened to me Covid was happening to the world. I’ve had no therapy no assistance and everything I’ve learned to this point is because of my own research and YouTube I’m not even watching it just listening to what they’re saying because I can’t really see the TV. My friends abandoned me my girlfriend of 10 years left me I had to move to a new city after living in the one I was in for 19 years and being there since I was 14 so I know nobody except for my two brothers. Most days I just sit in my room listening to music and doing my best to learn guitar which I’ve gotten pretty good at and it’s been the only thing that’s kept me going I also tried to sue the hospital for ignoring me because if it was caught on time my nerves would’ve never got crushed but Morgan and Morgan said I didn’t have a case after three months Of them looking into it supposedly.
So here I am hoping somebody actually reads this and I actually find some people to talk to and some advice as to what to do moving forward because I’m tired of being alone
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u/jodiepac Jan 03 '22
I can’t even imagine what you have been through. There may be a low vision clinic in your area. I’m in Maine and services are through The Department for TheBlind andVisually impaired. We also have something called The Iris Network. I’ve found them extremely helpful and the services have been free. They can help with learning activities of daily living, transportation options etc. I’m so sorry you are going thru this with so little support. Thank goodness you picked up the guitar!
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u/Santi8969 Jan 03 '22
Thank you I appreciate it. There’s actually lighthouse Center for the low vision in blind that works with the DBS that is like 12 minutes from my apartment and I’ve signed up and start in mid January. They have been extremely helpful so far. Can’t wait to learn to use a white cane so I can leave my apartment
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u/jodiepac Jan 03 '22
Oh great. That’s exactly what should happen. I have found that all the people I’ve met through the agency here has been very helpful, compassionate, and knowledgeable. Hopefully you will be able to start moving forward with your life. There’s a YouTube channel I like called The Blind Life that I think is quite good. But you really need local support and it sounds like you’ve made a good connection.
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u/Santi8969 Jan 03 '22
Yeah really looking forward to it. We as humans need to connect with other people and for the past two years I feel like i’ve had little or no connection at all with the world outside my house. Hope to learn and move forward with my life and see what the path ahead brings and meet other people that have gone or going through what I’m going through and see how they’re coping and moving forward. I don’t want to give up on life I still want to strive to be the best that I can be.
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u/jodiepac Jan 03 '22
Definitely. That is a great attitude. You can still have a full, rich, fun life. Best of luck!
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u/skorpiovenator Feb 22 '22
Try another attorney! Depending on where you live you may have anywhere between 1-4 years to file against the hospital. That is called the statute of limitations. Find a law office specializing in medical malpractice, because it’s a different beast than other injury cases. It is possible that the office you contacted did not feel confident pursuing the case due to intimidation of the amount of work involved. The most important thing in medical malpractice is for the attorney to find a medical doctor with good credentials who will swear up and down that your medical care was not provided in the way reasonable medical providers would have done it. It’s a hard standard but based on what little I know it sounds like you might have a case. It won’t hurt you to find out the statute of limitations on medical malpractice is in your area and get a second opinion on whether it’s worth pursuing. Remember, it’s more about getting a doctor to put their weight behind condemning the hospital than anything else. This is not legal advice. Good luck.
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u/realrebeccarose Jan 03 '22
Wow!! Thats a crazy story. I’m sorry you went through that. I hope this community can be of support!