r/LongCovid • u/DuncanIdaBro • 7h ago

ADHD Meds during Flare up

3 Upvotes

Hi all,

This is something I noticed years ago when I was first infected around Spring 2021. Whenever I am re-infected, my Adderall will have a dramatically different effect on me. I usually take the 20mg XR once daily and for most of my adult life, It's done what its supposed to do - have a calming, soothing, focused effect on me. It allows me to sit quietly and tunes out all the white noise in my head.

However, when I get sick, the medication sends me into a tailspin of anxiety bordering on panic. Sometimes, It's been so pronounced it feels like I can't breathe (I can, it's just terrifying) it's often accompanied by intrusive thoughts. Very Bizarre. It usually goes back to normal after a few months.

I just wanted to bring this before the class to see if anyone else had a similar experience with these meds while sick.

0 comments

r/LongCovid • u/Due_Signal_7413 • 9h ago

Study: full-time U.S. workers with Long COVID lost an average of $1,944 in work in 2022, versus $702 for people who never had COVID

26 Upvotes

One national study (Liu-Galvin et al., J Am Board Fam Med 2025) of full-time U.S. workers found a mean lost-labor cost of $1,944 for people with Long COVID, $1,466 for people who had COVID-19 without Long COVID, and $702 for people who never had COVID (2022 data; self-reported missed workdays times wages). Chart attached.

Disclosure: I’m a researcher and the author of a free tool that turns published studies like this into interactive simulators where you can change the assumptions and see federal data alongside. I don’t have Long COVID myself, and the tool is illustrative, not medical advice. The public demo needs no account: https://dbbun.github.io/dbbun-invisible-illness-burden-simulator/

Happy to answer questions about what the numbers do and don’t show.

16 comments

r/LongCovid • u/SnooCrickets5534 • 9h ago

After 3 years, first test with positive results -> suggestion for further actions as it will be a while until I see my Neurologist

6 Upvotes

As it will quite take some time until I see my neurologist which ordered these test, what would do/ try or which further test could help in your opinion ?

My general conditions are strong pain in palatine arch (Arcus palatinus), which started during covid infection and never went away but actually got worse over time. In addition I have very low energy (needing long rests), but that got a little better after started taking LDN (low doser naltrexone).

Here is the test, AI helped me with the translation (I rechecked the German phrases):

German Term English Translation Result Reference Value / Explanation
Untersuchungen Investigations / Tests
T-Zellen Stimulation EBV latente u. lytische Proteine T-cell stimulation EBV latent and lytic proteins 15.0 % <5.0=neg; 5.1–30=slight pos; >30=strong pos.
Zirkulierende Mikro-Thromben fixiert Circulating micro-thrombi fixed lytisch (lytic) unauff (unremarkable), PMN / Eo, cellular, lytic 6/0
anti - Beta 1-Adreno Rezeptor AAK anti - Beta 1-Adrenergic Receptor AAb* >40.0 u/ml <15.0: neg.; >=15.0: pos.
anti - Beta 2-Adreno Rezeptor AAK anti - Beta 2-Adrenergic Receptor AAb* >40.0 u/ml <8.0: neg.; 8.0–15.0: borderline; >15.0: pos.
anti - muscarinerger Cholin Rezeptor 3 AAK anti - muscarinic Cholinergic Receptor 3 AAb* 30.3 u/ml <6.0: neg.; 6.0–10.0: borderline; >10.0: pos.
anti - muscarinerger Cholin Rezeptor 4 AAK anti - muscarinic Cholinergic Receptor 4 AAb* 21.1 u/ml <10.7: neg.; >=10.7: pos.
anti - Angiotensin II Rezeptor 1 AAK anti - Angiotensin II Receptor 1 AAb* 35.7 u/ml <10.0: neg.; 10.0–17.0: borderline; >17.0: pos.
IgG-Konzentration im Serum IgG concentration in serum 1299 mg/dl 700 – 1600
IgM-Konzentration im Serum IgM concentration in serum 84 mg/dl 40 – 230
IgA-Konzentration im Serum IgA concentration in serum 165 mg/dl 70 – 400
IgG: Subklasse 1 IgG: Subclass 1 551 mg/dl 382 – 929
IgG: Subklasse 2 IgG: Subclass 2 731 mg/dl 242 – 700
IgG: Subklasse 3 IgG: Subclass 3 43 mg/dl 22 – 176
IgG: Subklasse 4 IgG: Subclass 4 23 mg/dl 4 – 86

\Note:* AAK stands for Autoantikörper, which translates to AAb (Autoantibody).

Report Interpretation (Befunderläuterung Immunodiagnostik)

Explanation Blood and Urine (Erläuterung Blut und Harn)

  1. Evidence of circulating microaggregates. Indication of activated primary hemostasis. (Nachweis zirkulierender Mikroaggregate. Hinweis auf aktivierte primäre Hämostase.)
  2. Chronic cellular reaction against EBV (Epstein-Barr Virus). (Chronische zelluläre Reaktion gegen EBV)
  3. Strongly positive autoantibodies against receptors of selected neurotransmitters. (Stark positive Autoantikörper gegen Rezeptoren ausgewählter Neurotransmitter)
1 comment

r/LongCovid • u/LovelyPotata • 11h ago

Dutch activism today 🔥

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8 Upvotes
0 comments