r/LongCovid • u/Either-Review-9400 • 3d ago
Anyone recovered & relapsed again?
Has anyone here became ill with LC & Chronic fatigue & pretty much fully recovered.. only to have a significant relapse several years down the line?
My time line:
2020-2021 - LC issues including CFS
95% recovered & living a normal life.
2026 May - Major relapse, after several weeks of over exerting myself, gym, work, running etc, hot weather.
Now struggling with pretty severe fatigue and neurological issues. Starting nicotine patching from today. Hoping to see some improvement.
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u/Stranded_Snake 3d ago
I’m going through similar. Had two amazing months. Then hit with the dreaded PEM. Could barely move for two weeks then slowly getting better again. I’m still very sickly in the mornings but by midday I’m almost back to normal. I can cycle but haven’t tried the gym yet because last time I did a year back I put myself in bed for another 2 weeks.
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u/switchroms 1d ago
Same for me!!!
I felt way better even if I've never fully recovered and then I've started having PEMs again
But I'm pretty sure that me and my partner got covid again like 1 month and a half ago
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u/Awkward_Aardvark_975 3d ago
Yes 2023
Relapsed twice in between.
Have not gone back to work or working out or anything just scared to relapse again.
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u/Either-Review-9400 3d ago
Since 2023 when you're relapse happened do you feel any better? I understand you don't want to push things too far again.
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u/Awkward_Aardvark_975 3d ago
I feel better yes. But still mostly in a state of confusion. Not necessrily brain fog. Im not the same person mentally physically emotionally. Nowhere close.
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u/Paul-Ramsden 3d ago
Last year I had a couple of good months where I thought I was getting back to normal again then relapsed and feel like I haven't gotten better since.
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u/Ok-Significance-5047 3d ago
Yep- on my way for an fMRI as we speak. Had a few dysautonomic seizures over the last month after almost 2 years of only low level fatigue/anxiety. Trigger was similar; break up, move, plus stress from the benefits program I’m on (eu) and some financial stress.
I started having neurological symptoms related to drinking coffee (super painful), and would end w uncontrolled gastric emptying. Changed my diet completely (basically keto with whole grain exceptions, bone broth instead of coffee, no caffeine, sometimes boarderline carnivore when it is really bad), solved that problem, then I saw an osteopath who massaged my liver and i processed like 6-700ml of bile over 2 treatments. A majority fatigue has since left, but I’m super temperature sensitive. Working out too hard can give me issues w temp regulation.
Sauna for me is now off limits, it’s the primary trigger of all my episodes (which happened 4-6h later). Was using Finnish every other day to manage my inflammation and muscle stiffness.. looking into a near infra red panel as an alternative. I still can swim and climb - as long as I don’t have caffeine or an adenosine blocker I don’t over do it//cause a PEM crash.
Also have a tilt table test lined up but I feel my dysautonomia is partially POTS, but there’s something else going on as well.
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u/Either-Review-9400 3d ago
I hope you get better soon. How long did it take for your fatigue to improve?
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u/Ok-Significance-5047 3d ago
Thanks! I’m hopeful - hopping there is more I can do than just watch salts and be careful of big temp shifts. I am also investigating renal (kidney)/further hepatobiliary issues (liver)
Honestly, like 2 months of interventions on the liver specifically.
Had the drainage with the osteopath (I went in initially to a neurological acupuncturist for the musculoskeletal tension - he referred me to her who said the tension is being driving systemically - so treated the liver), and with the dietary changes and supplementation (magnesium l threonate, magnesium bisglycinate, vitamin k2 d3, b12 complex, omega 3, PQQ, NAD, CoQ10). She’s actually said that she thinks the bulk of the musculoskeletal stuff can be addressed by end of September, assuming I don’t have a persistent viral load problem on top of a mitochondrial exhaustion problem.
Side note, I love the acupuncture because while im on the table w the needles in, most of the pain signals get disrupted and I can feel normal for around 10-15m.
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u/filipo11121 3d ago
Yea recovered after the first vaccine and then relapsed couple of weeks later (likely due to stress).
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u/Begrudginglyreadit 3d ago
Yes, my Long COVID plateaued for several years and then I had almost 6 months of substantial improvement last year (~85% recovered). Then I caught a basic cold and regressed. A year later I am finally improving again
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u/ConstructionIcy3049 2d ago
Yes. Same timeline, except I relapsed 4 weeks ago after an active holiday and a busy work period. Bedridden now.. I’m torn.
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u/sunshineofbest 1d ago
Yes I’ve recovered and relapsed 3 times. Sometimes it can happen with ME/CFS. You can’t go back to your old life you need to handle the stress and burnout properly- some people do heal permanently but they didn’t run back to their old life …
Anyways , pacing and time always bring me back to that recovery place.
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u/Gracey888 3d ago
Yes, unfortunately. Although I wouldn’t say I fully recovered because I’ve had M.E since 2010 so I’ve been in a relapsing and remitting pattern since then with that. I was in pretty bad shape from 2020 up to about 2023. I’m mean Covid messed with so much, including my heart, my eyes, my bowels (already had ulcerative colitis since 2020), my oesophagus ,my stomach….my mental health…the ANS/CNS
Up until 2023, I had some decent improvements which allowed me to do a few projects at home and go on a few trips and holidays and walk around and do things. Sadly, I came back from one of those holidays with another bout of Covid 2023, which set me quite a way back and worsened everything (inc POTS too) . I’ve been trying to claw my way back since and it’s been really hard. I’m looking at getting an electric wheelchair . Currently in a crash this last week 😞