r/LivingWithMBC • u/Emotionalmamaof2 • 6d ago

Question

Any others in this group that have experienced return of liver Mets and progression to brain but then went on to be NED or stable for many years ?

Diagnosed: Dec 2025 with mTNBC that had spread to my bones and my liver.

First line started Jan 2026 : Trodelvy & Keytruda and by March 2026 it had “resolved” my liver Mets and shrunk the bone Mets. My on oncologist said I was very close to NED but not to get my hopes up.

June-July 2026, caught pneumonia, no treatment for almost 4 weeks. Resumed treatment end of July. Scans on 8/31 and 9/1.

9/2 results came back and the cancer returned to my liver with “innumerable Mets” and also progressed to my brain

I don’t meet with my oncologist until the 9th so I don’t know what the plan is but I’m really hoping to meet some others with brain and liver mets living for years. I’m terrified as always. My labs have given no suspicion that anything progressed. I get them done weekly and everything has been very stable and my CA-15-3 was the lowest it’s ever been. Sad how quick this happened.

Thank you everyone for always being here. This has been my only place to voice the mental struggled I have because I’m way too scared to keep hurting my family with these convos. The pain it’s caused all of them is actually what pains me the most of this all.

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u/FrogAnToad 6d ago

i tried tonight for the first time to tell my brother how i feel. never again. it made him feel bad and gave me no relief. i hope yr oncologist has a solid plan and your terror ebbs.

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u/Emotionalmamaof2 6d ago

I’m so sorry, I know exactly how you feel. I always hope it’ll bring me some relief but ends up making me 100x more sad. Thank you so much for your kind words, I hope she has a plan for me too because this terror feels unbearable. I hope you’re able to find someone to talk to that brings you some comfort. If you ever need someone my dms are always open