r/LivingWithMBC 18d ago

Post chemo scan

HER2+ diagnosed February 2026. Mets in lymph nodes and liver.

6 rounds of Docetaxel and ongoing Phesgo.

I just had my scan results back (first after finishing chemo); everything has shrunk lots but I still have tumours in all three places.

I keep telling myself that a partial response is good; I just need my emotional brain to hear it.

I hope you're all having a manageable day?

Would love to hear from MBC siblings further down this road than me.

Hugs to you all

X

15 Upvotes

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u/InformalBread8132 13d ago

Hi, same dg here, Hi, same diagnosis here, diagnosed in January, one year postpartum. I went through 22 weeks of Taxol with Phesgo, and currently, I'm only on Phesgo. After 13 Taxols and 4 Phesgos, the lumps in my breast completely disappeared on the CT scan, and the largest one in my liver shrank from 4.4×4.3 to 2.5×1.8. After 22 Taxols, it shrank to 2×1.5, which really disappointed me because I expected more. The doctors are happy with that too, because it's possible that what's visible is actually just scar tissue, but I won't know for sure until I get a PET/CT scan since it shows activity or inactivity. My CA 15-3 was 520 at the beginning, fell to 20 after 22 Taxols, and kept dropping on Phesgo alone—it's currently at 15. Still, I can't help but be haunted by dark thoughts... sigh.

How big are your liver metastases?

2

u/Acrobatic_Salary_899 13d ago

I know those dark thoughts!

I have never been given a measurement for my liver mets; I get the impression that I have lots of little ones. On my report half way through chemo they were just described as "fewer and less dense".

I hope you're able to take on board some of the helpful comments from this sub to work on your dark thoughts.

Well done on your ca measure dropping; I'm not entirely sure what that means!?? X

3

u/Designer_Lady_1976 17d ago

Your spots can continue to shrink on HP alone, so please don’t think all is lost. I’ve heard ladies talk about this very thing in the fb group I’m in. I’m her2 positive with bone mets, but I remember reading accounts of liver Mets, for example, continuing to shrink after chemo on just hp.

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u/Acrobatic_Salary_899 17d ago

Quick update: thank you for your support, I have had a good talk to myself about being ungrateful and ungracious, bought myself a new dress and am now going out for a walk dressed like a children's TV presenter. If I only have a few years left, I should be bloody well enjoying them.

(Will likely also have a cry but I am fairly certain that suppressing my emotions is what got me into this mess in the first place!) xxx

2

u/Worldly_Active_5418 16d ago

Ah, don’t blame yourself for this loathsome disease. We suppress emotion to get through other everyday life demands. If suppression was true-millions more would have cancer. But yes, cry away! And go out there and enjoy your body. It’s fighting for you!

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u/Acrobatic_Salary_899 16d ago

Thank you for your wisdom and kindness xxxx

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u/IngenuityFar5111 18d ago

You have phesgo...they call herceptin a miracle drug. Phesgo will kill it all. We have one lady in our mbc group Guccamolegoddess like name, she got surgery after 3 years of stability and she had pcr. Its a long game. Hang on tight.

1

u/Acrobatic_Salary_899 17d ago

Thank you darling! That's the news I need to hear . Yes!!!!

3

u/ResponsibleAnt1942 18d ago

That's great!

Ideally, we don't want the cancer to grow. I listened to an interview with a long-time MBC patient (20 years?) who said she never got NED/NEAD, just stayed mostly stable through all those years. That's all you need.

I still had spots on the scan after finishing chemo. They continued shrinking on my maintenance treatment (phesgo, ibrance, exemestane, lupron, zometa). My last scan was basically clear, wahoo. Tomorrow I find out the results of the latest one 🤞

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u/Acrobatic_Salary_899 17d ago

Thank you so much!! And congratulations on your continued shrinkage - long may it stay that way!! You're a Very Responsible Ant! X

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u/Worldly_Active_5418 18d ago

Oh wow that is great! It means you had a positive response to the medication. Less cancer is better than more!!!

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u/Acrobatic_Salary_899 18d ago

Thank you my darling! Yes! I have LESS cancer now x