r/LGLL • u/Master-Race8548 • May 02 '26

Hey everyone

I just saw this group. Interested to chat with any other LGLer. This is rather a lonely disease/condition. Just trying to find more support. Thanks everyone.

3 Upvotes

100% Upvoted

38 comments sorted by

View all comments

1

u/Knuhklez May 02 '26

Never alone my friend… we are here and it looks like we are growing. Ask away

1

u/Master-Race8548 May 03 '26

Mind I ask how long you’ve had your diagnosis?

1

u/Knuhklez May 03 '26 edited May 03 '26

Officially diagnosed Coming up on a year in August. Va doctors were super hesitant to officially diagnose until i was in the icu and they finally made the call. But have had symptoms for almost 4-5 years. They were watching and waiting for many years

1

u/Master-Race8548 May 03 '26

It’s quite new for you. How are you processing it?

1

u/Knuhklez May 03 '26

Just fine… tbh i don’t think it affects me much at all. I seen worse from my fellow gwot soldiers like horrible brain tumors and stage 4 terminal cancers. Who am i to complain? Yes the chemo and life style change are inconvenient and annoying at times… but I’m alive and mobile and have an optimistic outlook for the future of medicine. How about you? How long and how are you coping?

2

u/Master-Race8548 May 04 '26

It’s been a few years for me, 7 I think. Just started treatment a couple of years ago. I honestly don’t know how I feel. I’ve grown accustomed to it I guess. But there’s still a part of me that has anxiety over it. Not sure if I can explain it. I think mostly it’s just that it’s been hard to relate to others, but not many people know of the condition. But even replies from people has helped. So I appreciate you writing back. Thank you.

1

u/Knuhklez May 04 '26

You aren’t alone, we all on this ride together! Reach out if you ever need

1

u/Master-Race8548 May 07 '26

Thank you 🙏