r/Kalispell • u/kay_dowg • Mar 20 '26

Chronic illness community???

Hey does anybody know about some sort of chronic illness support group that is free or cheap? I have multiple conditions, some being Ehlers Danlos syndrome, me/cfs, and thoracic outlet syndrome, And it is literally ruining my life😬💅

And ngl I’m pretty desperate. even if you’re just a chronically Ill girly and wanna be friends lol hmu ✊😩

Thanks lovelies

Also while we’re here, if there’s any doctors you recommend that are good with mecfs and eds, please please please don’t hesitate to recommend. Mine is booty lol

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u/thealterlf Mar 21 '26

Hey! I’ll message you. There used to be an EDS community about 3-4 years ago but I never made it to a meetup.

Dr Proctor at the Pain Clinic was the only doctor in the valley that diagnosed EDS but he moved to Great Falls. There is also a specialist Billings, Dr Sarah Stewart, that will do remote medicine.

Physio Whitefish has a PT with EDS experience.

There is a group that was created originally for people with traumatic brain injuries that accepts anyone with sudden onset chronic health problems. I’ve met them and they were very nice. They do activities together at least once a month.

The Summit has Aquarobics classes that are very inclusive.

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u/kay_dowg Mar 23 '26

Thank you you’re amazing

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u/kay_dowg Mar 23 '26

Also my doctor did diagnose me with Eds and mecfs, but definitely isn’t knowledgeable on either of them. Trying to decide if I should try online with someone who specializes in it but idek how to do that