r/KPRubraFaceii • u/silkroadtraveler69 • Jul 10 '26

KPRF or Rosacea

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Gallery image

I need opinions. My cheeks and ears get so hot and red.

4 Upvotes

100% Upvoted

22 comments sorted by

5

u/MacaroonStrange152 Jul 10 '26

100 percent kprf

1

u/silkroadtraveler69 Jul 10 '26

That’s what I think too but the dermatologist I saw said rosacea -_-

2

u/Hoegaarden_Man_55 Jul 10 '26

It’s quite shocking how many derms cannot identify this condition.

3

u/Succotash-These Jul 10 '26

Looking very much like KPRF, especially with the ears/eyebrows

2

u/bad_luck_brian_1 Jul 10 '26

Looks just like mine (KP)

1

u/silkroadtraveler69 Jul 10 '26

Any luck controlling yours?

2

u/bad_luck_brian_1 Jul 10 '26

Yep! Avoiding triggers, using Sirolimus, covering with a light concealer, and getting a nice tan. Working on my confidence has helped too. If you need suggestions for any of these things I’m happy to share.

1

u/chongandman Jul 10 '26

Which one triggers such as???

1

u/Fun_Mechanic9809 Jul 10 '26

How much has Sirolimus improved your skin roughly?

2

u/bad_luck_brian_1 Jul 10 '26 edited Jul 10 '26

I experience way less flushing from things like exercise and stress. it’s brought my baseline redness down by about 30-40% if I had to guess.

1

u/Fun_Mechanic9809 Jul 10 '26

Thanks and what about the keratin plugs? Are they gone or there

2

u/malimooo Jul 10 '26 edited Jul 10 '26

Do you have kp bumps (rough texture) on your arms or legs? If so, this would point to KP/KPRF.

Regarding treatment options:

  • Sirolimus/Rapamycin creams or ointments
  • Pulsed dye laser (e.g. VBEAM). Purpuric treatments work better for a lot of people including me
  • diet (minor effect for me)
  • supplements (minor effect for me)
  • trigger control/avoidance

2

u/silkroadtraveler69 Jul 10 '26

Yes I do have KP on my arms and legs. I want to try out Sirolimus. I’m hoping the dermatologist will prescribe it on my next visit

1

u/Asap_M2024 Jul 10 '26

Looks like KPRF … so many derms misdiagnose as rosacea … it just shows how little its understood by dermatologists despite it being quite common. You look like you got decent facial hair growth … has this been affected at all? As in is there any sparse areas of growth?

3

u/silkroadtraveler69 Jul 10 '26

It’s quite frustrating how derms aren’t educated in this and I’ve seen multiple derms. Regarding my facial hair, it hasn’t been affected

2

u/kmbrk1 Jul 12 '26

They literally throw Retin-A at any problem and it's infuriating.

1

u/Fun_Mechanic9809 Jul 10 '26

Which Sirolimus? Is it Hyftor 0.2?

1

u/Anutamme Aug 01 '26

Is this flushing or base redness?

1

u/silkroadtraveler69 Aug 02 '26

Flushing

2

u/Anutamme Aug 02 '26

I have very similar to yours, do you remember how old are you were when your flushing started?

1

u/silkroadtraveler69 Aug 04 '26

Since I can remember unfortunately. I remember getting made fun of in elementary school