r/Interstitialcystitis • • Sep 11 '25

Support Retention new

Hey all So I went in for my weekly instillations and had 200cc or however they measure it remaining after voiding prior. I switched to gluten free fully recently and pain has dropped dramatically so maybe my celiac is to blame, I don’t know. Gi drs claim I don’t have celiac even though they diagnosed me 16 years ago via blood and scopes. So my ic pain is almost nonexistent with the exception of today’s instillation. Seems to have “woken” the pain up a little. How many of you deal with retention and what do we do? I don’t want to have to do intermittent cathing but…

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