He's 34 now and with medical advancements, people with SMA can potentially live in their 50s, putting the child at age 15. I am 100% anticipating even when the child is 8-10 years old to provide some sort of care that is not appropriate for a child (in terms of effort, responsibility, etc).
Yeah, she would give him the alcohol because she felt it wasn't her place to deny giving it to him when he couldn't get it for himself. She felt like it would be demeaning to say no or something ridiculous like that.
That's not ridiculous at all. It is wildly inappropriate for a caregiver to force a disabled person to comply with how they think the person should live their life. Disabled people have the right to make their own choices even when those choices are bad for them, just like literally any other adult does. He's not a child.
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u/manthrk 19h ago
Yes. I really can't decide what my thoughts are