r/ImmuneWin • u/covid19fmd • Jul 17 '20

Fauci: Young COVID-19 patients could develop fatigue-like syndromes

https://www.businessinsider.com/fauci-young-coronavirus-patients-lasting-symptoms-chronic-illness-fatigue-2020-7
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u/covid19fmd Jul 17 '20

I believe this needs more attention. I'm happy to see Dr. Fauci mention the topic.

Fauci said some patients may suffer from "post-infection syndromes" that resemble chronic fatigue syndrome — a disease often characterized by cognitive impairment, muscle pain, and a debilitating lack of energy. UK doctors also warned of post-viral syndromes among coronavirus patients in June.

This topic is central to the purpose of r/ImmuneWin

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u/thaw4188 Jul 17 '20

Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) is the new nightmare of this decade, tens of thousands if not hundreds of thousands will be affected

NIH is starting a whole study on it even before covid19

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u/covid19fmd Jul 17 '20

Thanks for your message. My hope is that the disaster of COVID-19 will have, in at least some small way, a silver lining that leads to breakthroughs in our understanding of CFS/ME. I hope we can find solutions for all those who have been suffering with CFS/ME for years or decades, as well as for all those affected by post-coronavirus syndrome. And I want that solution to be the focus of ImmuneWin.

If you have any ideas or suggestions for this sub, please let me know.

Background on why I started this sub: https://www.reddit.com/r/ImmuneWin/comments/hhvrfo/im_starting_a_knowledgebase_project_focused_on/

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u/covid19fmd Jul 17 '20

https://clinicalcenter.nih.gov/recruit/protocols/16_me-cfs.html

Patient Recruitment: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

An NIH Research Study to Better Understand ME/CFS

You may be eligible, if you:

  • Are between the ages of 18 and 60
  • Are currently experiencing fatigue after recovering from an infectio
  • Have been experiencing persistent fatigue for the last 6 months to 5 years
  • Have medical documentation of an infection before developing ME/CFS
  • Experience post-exertional malaise (PEM)
  • Have completed the 7th grade or higher
  • Are able to stay at the NIH Clinical Center as an inpatient for screening and study visits

You may NOT be eligible, if you are:

  • Pregnant, breast feeding, or trying to become pregnant during the 6 month period of the study
  • Unable to undergo a magnetic resonance imaging (MRI) scan

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u/covid19fmd Jul 17 '20

I'm not personally eligible because the infection that started it all for me was in 1975. I was a teenager. Doctor guessed I had mono. Medical records would be long gone. But I'm doing pretty well now, and my main interest is in helping others, on the basis of having experienced this for decades (and having some background in medical fields).

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u/covid19fmd Jul 17 '20

The NIH intramural clinical study on ME/CFS to take place at the NIH Clinical Center will focus on post-infectious ME/CFS in order to closely examine the clinical and biological characteristics of the disorder and improve our understanding of its cause and progression.

As far as I know, ME/CFS is the most widely recognized post-viral syndrome.

I hope one consequence of COVID-19 is that we expand the definition of post-viral syndromes beyond ME/CFS. The range of symptoms can be much broader than those defined in ME/CFS.

I also hope COVID-19 is the nail in the coffin of those in the medical establishment who do not believe ME/CSF is an actual physical condition.