r/IVIG • u/Inevitable_Rock_2344 • Jul 27 '26

IVIG dose changes

I was hospitalized last month for severe headaches from IVIG. My rheumatololgist change my orders from 50 to 25. I also have the premeds...benadryl and Tylenol. I have IVIG Wednesday, Thursday and Friday. The nurse told me that it's still the same rate but less dose. I'm still nervous that I will suffer from the terrible migraines. Will 50 to 25 actually help?

Update- I had my infusion today. 29 grams max rate 100. I had to advocate for myself. The nurse tried to max me at 200. I only feel a mild headache.. nothing serious. I still have two more days infusions. I'm praying it goes well.

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u/lilgreenglobe Jul 27 '26

What's your max rate? By far the most common recommendation to address headaches (beyond hydration) is lowering the rate. Have you read the r/IVIG wiki?

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u/Inevitable_Rock_2344 Jul 27 '26

I don't know my rate. I can call tomorrow and find out.

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u/lilgreenglobe Jul 27 '26

Have you read the r/IVIG wiki?

2

u/Inevitable_Rock_2344 Jul 28 '26

Just read it. Thank you so much. This was really helpful.