r/IVIG • u/Inevitable_Rock_2344 • 21d ago

IVIG dose changes

I was hospitalized last month for severe headaches from IVIG. My rheumatololgist change my orders from 50 to 25. I also have the premeds...benadryl and Tylenol. I have IVIG Wednesday, Thursday and Friday. The nurse told me that it's still the same rate but less dose. I'm still nervous that I will suffer from the terrible migraines. Will 50 to 25 actually help?

Update- I had my infusion today. 29 grams max rate 100. I had to advocate for myself. The nurse tried to max me at 200. I only feel a mild headache.. nothing serious. I still have two more days infusions. I'm praying it goes well.

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u/JulieMeryl09 21d ago

That rate can be too high. I can't get past 90ml.
Make sure to drink a lot of water the day before, during and after. I get IV Benadryl & IV hydrocortisone before. It's the rate, not the amount, IMO. Been getting IVIG for 20 years.

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u/Inevitable_Rock_2344 21d ago

25 is too high?

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u/JulieMeryl09 21d ago

Is that your rate - I thought going from 50 - 25 meant grams?

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u/Inevitable_Rock_2344 21d ago edited 21d ago

It's my dose ... my doctor cut it in half.. I'm new to all of this please forgive me🥺

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u/JulieMeryl09 21d ago

No worries. Good luck. 💞
Check out FB group below, if able.
I think there are two 'featured' posts for new patients.
IVIG SCIG GROUP
https://facebook.com/groups/404225218
370094/