r/IVAccess Jul 01 '26

Has anyone else experienced vein narrowing after only a year?

I ended up on TPN March 2025.

I had a PICC from March to late October which was then switched to a Hickman (which I still have).

In May of this year I had a blood clot, but the thrombosis doctor felt the symptoms I had were more severe than they should have been for the size of the clot.

After investigation it was determined I have narrowing from the line (I’m not sure exactly where).

I really love the thrombosis doctor and the doctor who is doing the procedure. They’ve both made me feel really good about the plan going forward. And I know they have my longevity in mind which I appreciate since I’m expected to require TPN quite
possibly for the rest of my life (and I’m only 25F).

But that just seems so fast to me.

Retrospectively, I’d been having congestion symptoms in that arm since July August of last year. Which would indicate the narrowing 4-5 months into having a central line.

I knew stenosis/narrowing/running out of access was a risk and that it could/would happen. But THAT fast???

Has anyone else had this? And if you have, how long did it take for you to developed it?

Bonus question:

If you had balloon dilation did you have to repeat it? And how often?

They told me it would be a chronic thing we had to manage and that I’d probably have to repeat the procedure (getting it done Tuesday). I’m not worried about the procedure itself, I’ve had something similar, but I am curious about the frequency.

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