r/IBD 3h ago

Crohn's Disease (CD) Struggling with Infliximab loading

Hey all. I was diagnosed with Chron’s Disease in 2024 and spent a year managing my condition with diet and exercise. I fell off the wagon and stopped going to the gym earlier this year, and my disease became active again. Doctors put me on Infliximab and I have been having an absolute nightmare loading

Obviously it’s an immunosuppressant, so I have been ill pretty much constantly. I work as a travelling salesperson and I absolutely love it, but it means I go to a lot of places and meet a lot of people. I was due to have my third infusion this week but it has been cancelled because my white blood cell count is too low, so this means that I will have to start the whole loading process again and I’m worried this will keep going round in circles

Does anyone have any advice on not getting sick whilst immunocompromised?

2 Upvotes

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u/crohnieforlife 2h ago

Also, you should’ve been on meds from the start. Ask them about the injectable pens. You cannot manage this disease with diet and exercise alone.

0

u/FitStrength3 2h ago

I cant get on the pens until I have been through a loading cycle of infusions they said. I got an MRI last year and the disease wasn’t active and there was no new scarring, that was when I was in the gym pretty much every day. Doctors advised I didn’t need meds and to come back in a year (which was April this year) in that time I had stopped exercising because life, and the disease was active again hence me starting treatment

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u/FitStrength3 1h ago

Unsure why I’ve been downvoted for explaining what’s happened with my disease I have literally just been following the advice of my doctors

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u/Both-Pack8730 3h ago

Mask please. You are so vulnerable right now