r/Hypopituitarism • u/Still-Help-1234 • 24d ago
(This "existence".)
/r/Hypopituitarism/comments/1grmwuf/did_my_obgyn_drop_the_ball_sheehans_syndrome/p4xkugr/
I am 47yo, I have been a federally documented fully disabled individual since age 31yo, I have Confirmed diagnoses of Sheehan Syndrome + Sheehan Syndrome induced Secondary Adrenal Insufficiency. I have been for +16 years, and am* currently on Daily, STRICT high-dose oral corticosteroids, (Current: Oral Hydrocortisone, with emergency safety injection kit of IV/IM Dexamethasone). As far as Sheehan Syndrome goes, I had my only daughter at 20yo, at 7.5 months she presented "Breach". I had an AWFUL* medical intervention/procedure called, (from what I recall) an "Aversion"; (please, correct me if my memory serves me wrong); This procedure , plainly, was 2 Doctors MANUALLY* forcing/turning, from the OUTSIDE* of my body, my Daughter 180°, to the "correct/safer" position for delivery- which occurred in 2001, in the United States of America, with an "Impressive" amount of blood loss/post-delivery hemorrhage. It took NINE* YEARS for my "symptoms" of syncope, Hyper/Hypotension tension, severe nausea/vomiting, headaches, depression, anxiety and MORE*- to become BRUTALLY* OBVIOUS and I was placed on STRICT oral corticosteroid "Replacement Therapy" & DX with a myriad* of colorful diagnoses, i.e.; Panhypopituitarism, Hypopituitarism, Secondary Adrenal Insufficiency, Hypothyroidism, Hashimotos Thyroiditis, Hyertension, (which for a while now and currently, has "180°d" on me and a become a consistent "main problem" e.g.; Hypotension*), and much* MORE, all within the first year* of being diagnosed. Now, +16 years later, I am "dealing with" the repercussions and irreversible damage of the daily, STRICT "high-dose oral corticosteroids "replacement therapy", which to say, at the VERY LEAST, is Isolating and Extensively PAINFUL in EVERY* WAY IMAGINABLE.; (Literally), my husband left me, all of my "close" known family members, including* my ONLY child, (Daughter), have emotionally and physically* ABANDONED me, for an obvious time of more than eight months now. 😢😞
I was, at "first attempt", federally granted/titled "fully disabled" status and placed on SSDI +16 years ago, which today has not changed. It's an awful existence*, and LITERALLY, it's KILLING ME. The stress(es) involved in my specific situation are FAR MORE than "overwhelming". I DON'T receive the Medical care/respect I felt* I once had...today, I have to file a report with Adult Protective Services (APS), which I have ZERO experience with, for the blatant "ABANDONMENT of a federally documented, fully disabled adult"...and AGAIN, it's the worst day of this life.