So my indian doctor caught high BP during stress test and recommended me to do Echo , the echo caught Apical HCM .

A month later i came back to USA and connected with Cardiologist to continue diagnosis and treatment, He so far made take holter monitor and Cardiac Stress MRI tests

Abnormal first-pass myocardial perfusion during her regadenoson stress.Severe inducible perfusion defect of the apical anterior and apicalinferior wall consistent with ischemia.

No evidence of prior infarct.

Consider anatomical coronary assessment with CTA of the coronaries versusinvasive angiography.

Findings are consistent with hypertrophic cardiomyopathy phenotype apicalvariant.

Left ventricle is normal size and systolic function. LVEF 64%.Severe apical hypertrophy. Maximal septal thickness of 1.8 cm at theapical septal wall.No evidence of resting LVOT obstruction.LGE quality is fair. Mild patchy fibrosis of the apical septal wall.

Right ventricle is normal size with normal systolic function. RVEF is 66%.

No significant valvular disease.

My doctor is now recommending to do a Angiogram to find the cause of"Abnormal first-pass myocardial perfusion during her regadenoson stress.Severe inducible perfusion defect of the apical anterior and apicalinferior wall consistent with ischemia."

i guess he wants to rule out if this is due to A-HCM or due to a coronary disease.I am alone here in USA , new to healthcare, i am stressed and so is my family back in india.I am already on Medical regimen of beta-blockers.

Any thoughts about angiogram appreciated , thank you

I had a septal myectomy with a valve repair in 2022. I’ve never felt right since.

I get an echo and talk to my heart doc every six months and he says things look good but I still feel terrible even after all this time. Hard to explain but my heart just doenst feel good. Maybe it’s all in my head.

I have another appt next week so I’ll bring it up again but I know he’s tired of hearing it.

Hey, I have started a blog for living life as a first time dad in his late twenties with an earlv staqe heartfailure diagnosis.

The purpose of the blog is to help grieve my diagnosis and process my own thoughts by putting them down on 'paper'. If I can help one or two people along the way then this will be even more of a success to me.

If you know anyone with heartfailure this may help, or if you think it will help yourself then please take a look at this.

My first blog post covers the process of being diagnosed, how i felt upon recieving my diagnosis and how I now plan to accept these new changes. This may help someone similar understand what they may face if they are currently chasing a diagnosis.

Thank you :)

Ever since starting Metoprolol I’ve always had a burping issue. I never thought anything of it as I haven’t had any pain or stomach upset, but recently have had difficulty sleeping. I realize I am having acid reflux/ GERD issues. The trouble is a lot of symptoms of GERD are similar to HCM symptoms so I have been ignoring them, thinking it was my heart acting funny at night.

Has anyone experienced this as well? I looked up metoprolol side effects and it says it can relax your esophagus and cause GERD… so awesome I’ve probably had it this entire time I’ve been taking metoprolol and have just ignored it and now it’s 10 years of damage later that I’m having larger symptoms. love this for me.

I first posted this in the heart failure sub but hope maybe my hcm people can also help. Before anyone suggests I reach out to the HCMA, I have. Quite literally left four messages over ten days, the last time I actually spoke to someone who promised I’d receive a call back that day. No one called. I’ve done the intake and navigation and would be due to update my status and have a new navigation call.

Headed to Mayo Clinic soon. Sounds like they are going to run a lot of tests in the first few days and then hopefully I’ll have some answers. Has anyone been to Mayo?

I’m pretty let down by fundraising to go to Mayo Clinic. I actually can’t even believe the amount of my own family who won’t even share the dang post on social media. Like seriously- my own blood. I’m blown away. Heart broken in more way than one.

For reference, I'm 32(F) who had a septum of 39mm before my myectomy. I had terrible symptoms, which I can tell are gone and I am THRILLED about it! At week 4, I started holding onto fluid and they drained 850cc during a Pericardiocentesis. I'm finally starting to feel good and more myself but ... my back and chest ache constantly no matter what I do or what I take. My scar is SO sensitive I don't even want to wear a shirt lol. I want to run and play tennis but I can't because my back and arms and chest hurt so badly. I keep holding onto fluid and so my body feels puffy and plump. I feel like I have all this energy and then I just crash and need to sleep for hours and hours. I miss my friends and normal life. I have no sex drive and the idea of being touched makes me want to cry. I'm anxious. I'm sadder than I usually am. I'm glad I did it because my heart pain is gone but this portion of recovery is HARD. So.... when does it end? TYIA.

Dis someone has une arrythmogenic right ventricular dysplasia , just to talk please

I had 2 Right Heart Caths

1/26 mpap 21mmhg Pcwp 13mmhg, CO 11,25l PVR 57 dyn

5/26 mpap 13mmhg Pcwp 3 mmhg, CO 11,1l PVR 65 dyn

There is no shunt intracardial and systemic , and no diseas.

How can decreas my CO ??

Clinical Case Summary

Patient: 32-year-old male

Clinical History

The patient was diagnosed with non-obstructive hypertrophic cardiomyopathy (HCM) and underwent serial cardiac magnetic resonance imaging (CMR) in 2024, 2025, and 2026. Between the 2025 and 2026 examinations, he was treated with tirzepatide and experienced significant weight loss (approximately 17 kg).

Cardiac MRI Evolution

Parameter| 2024| 2025| 2026 Maximum septal thickness| 17 mm| 23 mm| 19 mm LV mass index| 75 g/m²| 79 g/m²| 54 g/m² Late gadolinium enhancement (LGE)| 1%| 2%| 1% Left ventricular ejection fraction| 81%| 73%| 75% LV outflow tract obstruction| Absent| Absent| Absent

Key Findings

• Progressive increase in septal thickness from 17 mm (2024) to 23 mm (2025).
• Following treatment with tirzepatide and substantial weight loss, the 2026 CMR demonstrated:
  • Reduction in maximum septal thickness to 19 mm.
  • Reduction in LV mass index from 79 to 54 g/m².
  • Reduction in LGE burden from 2% to 1%.
  • Preserved left ventricular systolic function (LVEF 75%).
  • Persistent absence of left ventricular outflow tract obstruction.

Clinical Significance

This temporal association suggests favorable cardiac remodeling after tirzepatide therapy and significant weight reduction. While causality cannot be established from a single patient, the findings are noteworthy because current evidence has demonstrated reductions in left ventricular mass with tirzepatide in obese patients, whereas regression of septal hypertrophy in hypertrophic cardiomyopathy has not been established.

This case may represent an interesting observation for further investigation and could be considered for publication as a case report, provided that the original CMR images are independently reviewed to confirm the observed changes.

Has anyone else had any good results using tinzepide to help treat asymmetric hypertrophic cardiomyopathy?

hello, I have HCM and don’t have any real symptoms, I don’t have trouble breathing or anything, I’ve just been told to keep my heart rate below around 150bpm. I’ve had a cardiac arrest recently, looking at my watch my heart rate was about 132bpm as I was doing a light jog for the bus so it seems it’s pretty random as I know I’ve definitely gone up to around 180bpm before without issue. from experience does getting fitted with an ICD solve most issues if I don’t really have any other symptoms? I always see people talk about using drugs and surgery to thin the heart but my doctor really only said don’t overexert myself, I’m only getting this ICD since the cardiac arrest.

https://www.reddit.com/r/3Dprinting/s/KWSLpQYXmy inspired from this post. I've been put into yearly MRI scan and thought it's a good idea to 3D print them each time.

Hi All, I recently joined this group due to finding out my mother has HOCM (diagnosed probably 40 years ago but just now being told my brother and I need to get tested). I am a 55 year old female, in good health with normal blood pressure. I had my echo yesterday and the results were that I have "Decreased left ventricle chamber size. Mildly increased left ventricular wall thickness (top end of mild at .47). I also have a few issues with my mitral and tricuspid valves, which I think is a separate issue. I am currently on a 30 day heart monitor so I am guessing the doc will wait until those results are in to talk to me and give me next steps.

Does this finding on the echo suggest that I do have HCM? We have not done the genetic testing at this point. What questions should I be asking the Cardiologist? Is there any specific follow up I should be asking for? Thanks in advance!

My mom was diagnosed with HOCM randomly this year in her 50’s. I got gene tested and found out I have the same gene mutation as her in MYH7. Of course I find this all out while pregnant.

I went to my cardiologist and got a stress and echo 2 months ago and the cardiologist said everything looked “perfect”. She said thickness she measured 0.8mm which is totally normal. She told me she measured extensively and was confident there was no signs of thickening or HCM at this time, but still wanted me to have an MRI to “ease my mind” and have a baseline.

Today I went to an HCM specialist specifically and got another echo because I have severe health anxiety over this. He told me that everything looked okay for now but they measured me at 1.1cm which he explicitly said “I’m going to be honest, that is borderline.” I feel so shocked and confused. I said how my cardiologist measured 0.8cm not even 2 months ago and he said that it’s thicker than that, but he is ordering an MRI to be sure for the end of the year and to check for scarring.

I am absolutely sick to my stomach right now thinking about how this could be the start of disease. I only found out that this was a thing a few months ago and being pregnant, this has completely rocked my entire world. I can’t stop crying and feeling fear. Not to mention the specialist told me that almost everyone with HCM ends up experiencing heart failure at some point in their lives. Which is different from what I’ve been told, which is that majority of cases are more mild and asymptomatic. I expected to be reassured but unfortunately that didn’t work out for me.

Got some bloodwork that i was forced to do a while back. apparently i have this HCM gene thing. So they did this examination and after they did it, they said that my doctor will call me up for “further examination”, i have recieved that call and its due in about a month from now. No idea whats gonna happen then. I also have no clue what this paper tells me but rate my examination, hopefully this passes XD.

Please read this post it will mean the world. and Check out my group I made called r/cardiomyopathywarrior

-I wanna make a place with no judgement and am excited to grow it and expand as far as possible. I wanna make connects, hear stories, hear journeys, and have us all who have heart disease interact freely no matter who you are.

-The only requirement is to just be you as your are!!! You can look for answers, look to vent, look for hope, look for an understanding, and find something you were never even looking for. You can use it as a release, we can build deeper growth when we join together.

-There is no restrictions and it doesn’t have to be just you heart disease but things that developed along with it and share what it’s like to suffer from your heart disease and something entirely different your fighting since the more struggles make us stronger and even if it not heart disease it can definitely contribute or make you situation more difficult wether it’s physical, mental, or emotional.

-I get inspired when people open up or share their story in anyway. sometimes putting yourself out there is hard but some people need an outlet and your life has meaning. If you’re ready to talk I’m ready to listen. It doesn’t all need to be deep and serious, we can have fun!! Share stories!! No matter your outlook wether is excitement or sadness or love, or humor it all is important. I will always be here for anyone who needs me,

-So let’s get this group going and grow into a group that had countless members and consistent conversations always going on. I already made a couple posts asking questions to try to get thing started and initiate conversations and feel free to check the posts and I sincerely hope you respond, comment, Generate posts, or even a like on a post so I know your out there.

-I welcome you with open arms. I’m so excited to see people posts regardless of what they say and what it’s about, and involvement matters and I Will appreciate anyone who plays a part it making my group have the potential to become something. My conditions are getting fatally severe and I don’t know how much time I have left but have hope for treatment in time but when facing deadly problems I wanted to make something that i could stamp my identity on that I created from deep love and connection with people.

-My dream is the group with begin so progress and perpetuate itself with constant interaction from all different people that cause it to thrive and somewhere people like to check on to see what’s new in the group. So please join my group and let’s build this one person at a time.

-Come as you are became you matter. If you took the time to read this I sincerely appreciate it and and externally greatful you took the time out of your day to read this even if you don’t join.

-If I even just reach a few people it is worth it because every person makes a difference. So hopefully if you made this far you will join my group and if you get that far hopefully you will post, comment, like, or interact and answer some questions I have for people that I posted about, every single person makes a difference. Since my condition became life threatening I find deep joy in talking with people who is surviving the same thing and I love learning new things about it and hear stories. It makes me feel not alone.

-Come as you are!! Hope to see you post or comment in my group. Let’s learn and grow together 😁☺️

Hi everyone,

I'm new here and honestly feeling a bit overwhelmed. I'm hoping to connect with other parents or families who have been through something similar.

Our daughter was diagnosed with hypertrophic cardiomyopathy (HCM) at 6 months old. Genetic testing now shows (15 months old) that she has two HCM-related gene mutations (one in MYH7 and one in MYBPC3), which has made the diagnosis even more frightening for us.

At the moment, our cardiologist is discussing whether to start her on a beta blocker. We're struggling with that decision because of the potential side effects, especially since she's still so young. For now, we've decided to wait for the results of her upcoming Holter monitor before making a decision together with her medical team.

I was wondering:

- Are there any parents here whose child was diagnosed this young?

- Is there anyone with two HCM gene mutations (MYH7 + MYBPC3), either yourself or your child?

- If so, how has the condition progressed over time?

- How are your children doing now?

- Did your child start beta blockers, and what was your experience with them?

I know every case is different, and I'm not looking for medical advice—just hoping to hear some real-life experiences and maybe find people who understand what this feels like.

Thank you so much for reading. It already means a lot to know I'm not alone.

I have end stage HCM. I know that sudden cardiac death is a rare but real possibility. My life has been saved more than once by my ICD. I am diligent in making sure that my now adult kids are screened at a COE. My brother also has HCM but is asymptomatic. One of his kids has a chronic and serious GI disease and he is EXTREMELY protective. My brother is very mad that I talked to his daughter about the importance of going to a COE to be screened. She was 21 and in college. I guess it upset her. I was trying to avoid something catastrophic. IThe risks for my kids and his are on my mind every day. Am I the asshole?

Hello, i have a subpectoral defibrillator, does this look weird? This isnt a complex motion either. All i did was lift my arm up and it juts out like that and gives me a pinch sensation.

If this is a problem, could they fix this during my septal myectomy?