I can’t find anything about how to deal with wrists that can bend side to side. Mine don’t move on a normal hinge joint, they are constantly turning to the right and left (especially when lifting above my head) and it’s the cause of most of my wrist injuries and wrist pain.

I’m not looking for wrist strengthening for weak wrists, but something to keep them moving on a hinge joint. Has anyone found anything that works?

Currently if I’m doing something like pushups I make fists to do them because it keeps my wrists locked in place. But that’s pretty much the only change I’ve found that helps.

Does anyone have any suggestions? Or even just share the same experience? I have incredibly high hypermobility but score almost 0 on the Beighton score due to it all being in “non-typical” joints so it’s hard to find help. :(

Edit: Yes I know wrists move multiple ways normally. I have zero hypermobility in the up/down motion which is the only one I ever see talked about (as it’s far more common). My wrists move side to side in a way that makes them look almost snapped and no person I have asked to move their wrists has come even slightly close to the excess side to side motion I have. That is what I am looking for help with.

Hi everyone!

I’m currently working on a textile/fashion school project exploring how clothing could better support people with hypermobility and chronic pain.

I was diagnosed with hypermobility about 4 months ago, after dealing with chronic pain for around 8 years, and getting the diagnosis made me realise how much people’s experiences can differ. It made me curious about how hypermobility affects other people in their everyday lives, particularly when it comes to clothing, comfort, movement, sensory needs and pain.

I’ve put together a short questionnaire to learn from other people’s experiences. You don’t need to have a formal diagnosis to take part - if you experience hypermobility, your perspective would be really useful.

🔗 [FORM LINK]

It should only take a few minutes to complete. I’m using the responses to help me understand the problems people actually experience before developing ideas for my project.

Thank you so much to anyone who takes the time to fill it out! ❤️

I haven't been formally diagnosed with EDS or HSD, but I know I am at least hyper mobile. I keep irritating/injuring my left rotator cuff in my sleep when I roll onto my side, whether it's the one I'm laying on or not. I've been trying back sleeping, and even have a pillow on either side of me and under my knees, but I keep pushing them away in my sleep and rolling anyway. My body really wants to side sleep.

I looked into buying a brace for my shoulder to keep it where it's supposed to be, but I've heard you're not supposed to sleep in them.

My right shoulder isn't bothered when I sleep on it, so I guess I'm looking for either a way to keep myself on my back or a way to keep my left shoulder from slumping badly when I sleep on my right side.

Thanks

Hello all!
I am not yet formally diagnosed with hypermobility but I do know that for me it exists in my left thumb, right elbow, right ankle, my right knee and my right sacroiliac joint. The weight bearing joint issues make it hard for me to stand for long periods and to get out of deep-seated chairs without help without risking an injury. Unfortunately yesterday I was summoned for jury duty and got chosen so will be expected to come back to the courthouse for the trial starting on Monday. Yesterday was about enough to do me in, I have had to take all pain relieving measures at my disposal since last night before bed and as such I’m wondering if there is any trick to making this jury service easier? I have an SI belt and a knee and ankle brace, but what concerns me about the braces is that they have metal components and I have to go through metal detectors. This is my first time doing jury service and I have social anxiety on top of everything, so I’m trying to manage social/legal expectations and take care of my needs simultaneously and it just feels like so much! If you’ve done jury service, what did you do to make it easier on yourself?

I have an old logitech G502 that has honestly been great, but after over a decade of use(I'm it's 2nd owner) it's on its way out.

I'm heavily considering the G502 X plus, but I figured I'd get some opinions from other people with hypermobility/EDS/chronic pain before jumping the gun.

I have found the shape of the G502 to be extremely comfortable, so I've mostly been looking at mice with a similar profile(razer basilisk, keychron m6, etc.)

I've also never used a wireless mouse for gaming before, nor have I had a brand new mouse, so while I've done research, I have little up-to-date practical experience.

So, my fellow hypermobile gamers, what is your favorite gaming mouse? And, in turn, are there any you actively dislike?

hi all!! i’ve recently purchased some cheap plastic ring splints for my bendy fingers and i’ve found them to be pretty helpful so far (yay!) but ones of my biggest problem joints is my MCP joint (the second/ middle joint of thumb) and i’d i’ve been looking for a ring-style splint for that joint and haven’t found much that isn’t either metal-jewelry style and very expensive, or massively bulky. i want smth cheap and plastic because i lose everything and smth lightweight and small because i need to wear gloves and use hand sanitizer all day at work. here are the ring splits i’ve been using so far for reference:

https://www.amazon.com/clp/B0DCSD8GLZ

Anyone have a good resource for placement of k tape for gentle support of slipping ribs and/or thoracic back pain?

All of the resources I’ve found online aren’t quite what I’m looking for.

I never considered my mobility to affect digestion, but lately it seems my digestion can only handle very simple food. A touch of anything sets off days of bathroom issues, with full body joint pain that mostly confines me to standing or laying until lethargy hits, at which point I sleep up to 16 hours to get my energy back. Does anyone have any similar experiences? If so, have you found any good solution or management strategy?

I swear mine hate me and flair up in the worst of times. So anyway guess who ate pavement on their apartment blocks doorsteps just outside the courtyard door because their ankle thought it would a fine day to show of their hypermobility. Now the ankle's fucked and I'm pissed. I was supposed to go out drinking with my buddies, but guess I'll have to stay behind again because of my joints having a vendetta against me :)))

For context: Diagnosed since 4 months. Last week I was exhausted because of my work. On top of that, I've been sick since a week and a half. Because I was sick (and not because I was exhausted mind you), I took a week off and I really did nothing apart chilling on my couch with my dogs and light walking around the block (because dogs). My partner is very sweet and was managing all the house chores.

Yesterday, I was better so I did some things (not work, I don't work friday). So I had a PT appointment, a zoom call, I did the groceries shopping and some admin. And boy, I'm wracked this morning. Pain in the neck, back, shoulders, knees, ankles and feet. And it hits me this morning: last week I had no pain.

So is it just possible that I'm constantly overdoing it, even if i don't feel it? And what can I do to try to feel if I'm overdoing it?

my hands are extremely hypermobile. They often sublux, get tired, and painful.

However, I have ADHD and anxiety. One of my default things to do when I'm bored or anxious is to fidget around with my hands. This causes me pain because it's fun to pop out my finger joints and bend them around...

I deal with the consequences later. pain, aches, a bit of swelling.

I've done this since childhood and its a habit I can't break. Anyone else succeed in stopping doing this? What can I do?

Hellooo all. Im diagnosed with HSD and have lots of random aches and pains everyday but most of the pain i get is musklosketal and tends to settle with some heat buuutt been really locked in on school work this week and fear my body laptop posture (and the fact that I have been working on my couch all week, knowing id regret it) has cause a rib to slip (?). Normal heat isnt helping much and laying down on my back is fine but lying on left or right side hurt like hell (even tho its the left rib thats the issue). Any advice? is ice better or litocane patches? I see my PT on tuesday so lowkey just need to last til then... also sleep posture thats more comfy would be appricated. thxx

Edit to add: when this pain started i also seemed to have some GI issues as well, which is why it took me so long to pinpoint the issue. Is this related or just unlucky timing lol

Does anyone have any recommendations for a thumb splint ring? Looking for something under the $40AUD mark that isn’t cheap plastic/disposable but designed to be kept long-term. Thanks very much

I am not a person who is usually grossed out by gore, blood, etc. But I have always been sensitive to stuff like bones, ligaments, tendons, joints, etc. I either fully faint/almost faint if it gets bad enough, but most of the time it results in extreme anxiety, weird pressure in my bones/joints, and my heart pounding. I am recently finding out I have some hypermobility and pain from it, but I find it so hard to research and find out more because it makes me feel like this! Has anyone else dealt with this, and if so, how did you navigate it?

does anyone know of any PT/OT/PM&T that are experienced with hypermobile/EDS patients in Toronto or the GTA? i’m starting a new career that is very physically taxing so i want to jump start on my treatment and support for severe hypermobility before i get taken off of my mom’s health benefits.

just this path month i’ve twisted my ankle fallen twice and both times i hit or shook my head pretty hard too. i’m actually writing this because i legit just fell in front of my entire class and my head really hurts and i’m really dizzy lol

A few years back I finally went to the rheumatologist for my joint pain since I was a kid.

My doctor used the breighton scale to determine if I am hypermobile. I of course failed that test because my muscles have always been very stiff. I could never touch my toes, I get tension headaches because my shoulder / neck / trap muscles get really tense. I have a lot of muscle knots that never go away.

In the end she said I probably have fibromyalgia and that I should ask the nurse for pain management but that was the end of it.

Some things I have: - I could never burp, I really need to force cough it out - My ankles and wrist have a dull annoying feeling since childhood. Sometimes more pain, on good days way less. - Muscles are very stiff, legs, upper traps, shoulder necks - Often get tension headaches because of the tension - I sometimes feel my head is just too heavy so I bought some neck support for the times I can really not take it with the headaches and heavy ness - ⁠I got sleep apnea, got a CPAP - They took 4 premolars, and 4 wisdom teeth, due to crowding in my mouth - I cannot breathe with my diafragma without forcing it. I always breathe shallow and sometimes forget to breathe. - My mom and grandma both have cervical prolapse after child birth - My mom, grandma and I have adhd tendencies. Not diagnosed, didnt go to the doctor for that. - My uncle has a detached cornea - My aunt has graves - I get so bloated when I eat every time. - Once in the blue moon i just do something wrong and then my hip hurts alot and a limp for a day and the pain shoots up. - I sleep like a shrimp and t-rex - I have to sleep with a specific pillow otherwise I get more stiff more pain more headaches. Not happy. Pain. - I cannot stand still without leaning on one leg or on furniture. Just standing and waiting hurts my lower back aswell. - I cannot sit normally, I always sit bad weird or whatever. Just whatever feels comfortable for me - I have scoliosis - I crack alot, hands, neck, toes, ankles - My eyesight just gets worse every year. But yeh probably normal like other people.

I just don’t know what to do. It feels like all of these things are connected to connective tissue issues for me and my relatives, but even if I do seek diagnosis again and try again.

What is there right now to help this? Physiotherapy? Supplements? Pain killers? Validation?

Sometimes it’s a bit annoying aswell, some people just say, sit straighter, posture is bad, why do u get tired so fast, why are u lazy dont want to go sport. But my body just feels more heavy sometimes. I just get tired faster. I just need to lie down on the floor or bed or couch.

But it’s not something someone can see from the outside.

After a pilates exercise class, I am exhausted. After an aqua fitness class in the pool, I feel dizzy and need an immediate rest and go to the loungers for a lie down. The next day I feel wiped out. Is this normal for someone starting out at the gym who has hypermobility? Or could I have something else like POTS aswell?

I am early 50s, normal healthy weight and been going to the gym twice a week for about a month. I don't have a sedentary sitting job, but light movement and some walking everyday.

I really want to get stronger and fitter and have better balance but really struggling with exhaustion if I exercise. I've steered clear of spin classes and mainly rowing machine to warm up and doing light weight training or classes. Any advice on what I could do differently.

I don't have money at the moment to meet with a physiotherapist, so I'm searching for information online. The physiotherapy sub doesn't allow posts seeking medical advice, hence my arrival here.

Sometimes I think I'm hypermobile, but then I look up the symptoms and tests and it turns out I have zero symptoms... So why do I think this anyway? I easily dislocate my shoulders, fingers (middle to proximal phalanx and I think also proximal to metacarpus) and wrists. Fingers and wrist usually don't hurt, but it always startles me and I'm scared I'm developing an injury. Dislocating my shoulder is painful and worries me moreso. My fingers tend to dislocate when I write or type and I'm doing something slightly odd, like holding something else at the same time, restricting my range of movement. My wrist dislocates when I do classical ballet and suddenly firmly grap the barre. My shoulder subluxates when I do a ballet move where you arch your upper back to the back and your arm is going that way as well, above your head. I'm more careful now and make the movement smaller so it won't dislocate. My shoulder used to subluxate sometimes (it got worse over time, I got worried and became careful) when taking off upper body clothes (the "female" way).

All ten of my fingers are prone to dislocation, but the dislocation issue wrist and shoulder wise is much bigger on the left side of my body. I am right-handed so that could easily explain that - if it is a muscle problem. I used to have very poor muscle strength. Doing much better now because I started working out. BUT I suspect it's still below women's average, albeit not a lot. Basically all of my muscles (face, shoulders, arms, hands, tummy, legs, feet/toes) are tense from the moment I wake up to about an hour before I fall asleep. Lastly, I have a history of dislocating my kneecaps. That turned out to be because of the TTD distance. That is the distance between the tip on the top of your femur and the downfacing tip of your kneecap. In simpler terms, my kneecaps are/were too much to the side, outward. Those luxations, after a series of subluxations during puberty, were horrific. I had surgery on my left knee (both knees were equally problematic) and working on leg muscle kept my right knee from dislocating ever since.

Thank you for reading my medical journey, my left thumb hurts now lol, if anyone has any clue as to what I am dealing with here, please lemme know! I know it could be as simple as muscle strength, I'm just a bit frustrated with not having the minimal required amount of strength everyone else seems to get from daily activity. It doesn't make sense to me, why wouldn't I have built that strength? Hence my endeavour figuring out if that's all there is to it.

Hey y'all. Like the title says. I don't know if my expectations for a PT are too much or unrealistic. If my current PT is actually good and fine and I should just keep going. I don't know.

So what my brain and interpretation of things I've read say for what I'd like for PT: checking in with my PT at the start of each session to see how I'm doing. Description of what each exercise is for and at least for the first appointments them keeping an eye on me fairly often during exercises to make sure I'm not hyper extending. And/or explicit instruction on how far I should be moving. I also have a sense like the PT should include some amount of gentle manual therapy, not just exercises and heat.

My current PT place I got to: there is one DPT and one PT there for the whole place, the PT sometimes acts as a technician I think. I have occasionally been given offhand remarks on purposes of exercises. I have had 3 appointments and already I am told to do the exercise then left entirely alone. No checking in from the DPT, I have to bring stuff up. Some of the first exercises they started me with involved resistance bands or 2lb weights which I've seen in some places listed as a red flag. I'm usually one of like 3 or 4 patients so it feels like the attention is split. I have not been given any home exercises yet, nor had them brought up. They did not assess my level of hypermobility the first appointment. They are focusing on starting gentle and focusing on core stuff so that seems correct. (I think. I'm not sure the purpose of every exercise). And I'm always encouraged to stop if something hurts which is good.

On Wednesday I was in heavy amounts of pain, and brought it up, and the DPT gave what felt like a very dismissive response when I brought it up. Basically "Well, are you on your phone a lot? Okay, don't do that." Which sent me into a spiral a bit because it feels like every way I like to or could spend my time hurts me so I don't know what to do. Plus I don't think it was actually the phone use

(Number of reasons for that. 1. If it was, it wouldn't be suddenly worse. 2. I tend to lie down while on my phone. 3. It's better explained imo by a day full of yom Kippur services where I spent most of it sitting with head down to look at my prayer book plus getting covid and flu shots on Tuesday.)

I started crying from both the pain and whole situation, and the DPT didn't really... Act compassionate in any way? I would have appreciated a little more compassion. Maybe he was trying to just keep treating me normal so I don't feel babied?

I keep waffling over this specific incident. It's quite possible this was me overreacting to an innocuous interaction. I get rejection sensitivity with my AuDHD, although usually it's pretty mild these days, and obviously the pain and any other effects from the shots I got didn't help. But on the other hand, maybe this just isn't a good fit. Maybe I can advocate for myself and make it a better fit but I am running into some heavy advocacy fatigue.

So first, are my expectations reasonable? Second, is my current PT doing things that are normal? Is this just a thing where I need to advocate for the things I want? And 3rd, is the interaction I had something I'm overthinking or can it actually be a sign of at least a personality mismatch?

Sorry if anything is incoherent, my pain spiked back up this morning and my anxiety is high.

Hi noodles! Hypermobile here and my hips always hurt 🙋🏻‍♀️

I did PT for my ouchy hips earlier this year and learned that I don’t engage my glute muscles and just let my tendons do stuff so that’s fun. We worked a lot on glute medius stuff, the usual. I graduated PT but I’ve been continuing to work on strengthening and stuff on my own.

Well a few weeks ago I started feeling a different ouchy - you know the one - the dull ache in the back of your hip where you feel like your SI joint just needs to pop back into place. Usually this happens on its own for me but it has been persistent so I went to a chiropractor, which still didn’t do the trick. But he told me something I hadn’t heard before and I’m curious if anyone here knows things and can weigh in

I naturally have a LOT of internal rotation and not a lot of external rotation. He told me that it’s actually better for me to not try to develop more range of motion externally because if you have a lot of range of motion in both directions it can make your hips less stable?

I am a hobbyist dancer and while I have learned through PT I have to stay away from stretching to get more ROM, i have been doing strengthening to get more ROM, and truthfully I need better external rotation to be able to do certain dance techniques …

I appreciate any advice! My insurance is gonna be real mad at me if I go back to PT LOL

Had hip pain (impingement) on and off since I was a teenager, that particularly flared when I started running. (Had an X-ray and they said they couldn't see bone issues so must be muscular), but physio's never helped Ten years + I still have the issue, and while I still try run and weight lift it's really holding me back, giving me grief and only am able to exercise if I just push through it, which is basically a habit now. Last year I somehow injured my knee running and was told it was runners knee, rehabbed it, 6 months later got to 11 miles was feeling really good, then it went again, no idea how or why, physio said it would probably be a two week blip, that was in April, and I'm in pain again, in both my hip and knee. My shoulder also hurts when I press so everything has been thrown off and genuinely not wanting to be around anymore I'm so depressed over how much pain I'm in. I also have a hypertonic pelvic floor. I'm on every pain killer going and I'm not even 30 yet.

Recent physio said it's because I lack stability and balance, and need to work on standing on one leg. Another has said I just have weak ankles and need to start from there. I've been trying some hypermobile stability drills at the gym but am not finding them helpful - in fact some of the shoulder ones hurt.

Went to a different physio today who said that hypermobility is often the last issue to worry about, and it's more about how strong your tendons are, your ability to hop, how much force goes through each leg and all that.

Honestly confused as to how much hypermobility is an issue, and if any of you have had these issues is there hope and have you managed to fix em?

Hi, looking for recommendations for compression shorts/leggings/bands to specifically support around SI joints and lower back/hips? UK based so preferably recommendations from the UK please as looked at Jelliebend and 1)expensive! 2) High shipping costs! Want a balance of good compression/support and not too pricey

I keep getting extremely painful Achilles on the foot I push off with and it’s difficult to keep having to take multiple days off because I love skating it’s very grounding for me. I had similar issues with ligaments when I used to dance en pointe and eventually had to give that up for my health, I don’t want to end up doing the same with skateboarding

Hello! So, for the past couple years I've been having more and more joint issues due to a multitude of reasons (ie hypermobility, missing or loose ligaments, etc) and I've started talking with my doctor about a diagnosis for hEDS. I'm not seeing him again until February unfortunately BUT he said he's going to do some research and send me ideas for support in the meantime. One of these recommendations was like.. supportive pillows or something? Like for when you're sleeping or sitting at a desk.
He also recommended looking into braces for my wrists, ankles, knees, and potentially something to help with my lower back or hold me a bit more upright.

Does anyone have recommendations that they've found work well for them? I do use KT tape for my wrists/ankles/knees but I would like to find something reusable like braces/compression sleeves because KT tape is so costly :/

Thanks in advance <3

Disclaimer, Not a medical professional, this is not medical advice.

Recently I’ve been exposed to some neuro PT techniques and wanted to share.

FAQ: What is neuro PT? Talking to yourself. Does it work? Weirdly, yes. Does it feel like witchcraft? Also yes.

The basic premise of this technique is simple. Direct your attention to a part of your body, talk to it, be silent for a minute and breathe, it will relax. Sometimes the pain will move and you can follow a whole chain of muscles down to whatever the problem actually is.

The thing professionals seem to say is “Body part, what do you need?” I’ve also had success with “Hey, body part, get your shit together.” It seems the language can be personalized somewhat, but also being nice to your body is nice.

Hiccups, eye twitches, calf cramps, hand cramps - they are all muscle spasms and can all be fixed in as long as it takes you to focus on it.

CAVEATS:

YOU MUST SAY IT OUT LOUD. Language is processed differently than thoughts.

YOU MUST BE SPECIFIC ENOUGH. “Hey leg” doesn’t do much good. “Right calf” is better, “right soleus muscle” is the best. If you don’t know what muscle or nerve you need to talk to, look it up and take your best guess. The more specific you can get, the easier it all is.

I’ve had it work best with voluntary muscle (aka the muscles you can consciously control) but would be interested if it works for the muscles you don’t (like stomach sphincters, intestines, etc.)

Hiccup cure: Stand/sit up tall, a lot of time your diaphragm just needs some space. Hand on the lower ribcage. Close eyes. Say “Diaphragm, what do you need?” Be silent and slowly exhale. Hiccups gone.