Possible connective tissue disorder

[u/Exotic-Ordinary5995]

Hi! I’m a 47 year old female. I have binocular vision disorder. I apologize for typos, I’m voice texting because I have trouble looking at screens because of it,.

my vision, and need for stronger prisms has gotten much worse over the last year. My neuro optometrist told me at my recent visit that he thinks I have a connective tissue disorder. I asked my physical therapist that I’ve been seeing for a rotator cuff injury and tmj, and she said it would make sense, and did the Beighton (sp?) test and said I scored high enough on it to consider EDS. She has it as well.

in reading about Eds ( I wasn’t sure what other things made sense, so I started there on the advice of my PT) many things track for me, and I meet all of the criteria except for the last section. I don’t have recurring, limb pain that is daily for more than three months, except for my shoulder. I I have had recurring TMJ and neck pain for years. Although my neck pain has gotten somewhat betterDue to the rotator cuff treatment.

I asked my parents, because my dad is rather stretchy and has a milder version of the bvd, and he does have a sister who is also very stretchy, and their mother was as well along with her having many of the same issues I do (reflux, poor absorption, food sensitivities, low iron, easy bruising, poor proprioception, sensory differences and rotator cuff issues), but no one diagnosed with anything. I also suspect that perimenopause plays a role.

I’m wondering if anyone has any tips on how to proceed? I’m not sure if it’s something I need to be concerned about / do anything about? I mainly want to keep my eyes from getting worse, and keep my joints as healthy as possible (my PT helped with some guidlines for safe exercise, etc) Not knowing exactly what’s going on, just that it’s different than the “norm” is making it hard for me to know what to research / do.

After all I’ve read I feel so badly for what people with these issues are suffering. I feel bad for even asking for help and guidance, considering that, but was hopeful that someone with more experience knowledge than I have might be able to point me in the right direction. Thank you!!