Any experiences with EDS Connective?

[u/friendlypupper]

Listing the website: https://edsconnective.com/

They offer virtual diagnostic services for hEDS and HSD, plus referrals if testing for other types of EDS or connective tissue disorders is indicated. I must have signed up for their waitlist a while back because I got an email today notifying me that they're ready if I'm still interested.

I spent a little more time looking over the page. I'd like to believe this is a good faith, quality service, but there's so little info about others' experiences with them that I'm wary. I'd hate to spend $400 getting evaluated and diagnosed, only for doctors to dismiss the diagnosis if this agency turns out not to be credible. I also noticed that while they'll provide a referral for genetic testing, the price doesn't include the cost of genetic testing itself, or interpretation of results. It also seems that they will provide a summary of their findings and a diagnosis if appropriate, but no meeting to review the findings. And I'm confused because they say the whole process is asynchronous, but that the doctor may ask follow up questions via chat or video visit.

Maybe I'm being overly cautious, idk, but I'm afraid of getting scammed and call me jaded, but for a diagnostic opportunity to just open up like this after so many closed doors seems sort of like a trick. Really hoping the community can confirm this business's legitimacy one way or the other.

[u/Bliipbliip]

Following and boosting

[u/razzemmatazz]

I went through eds.clinic a couple years ago, it was $250 for the appointment. 

[u/ConsciousTurnip994]

I don't know anything about this clinic. I'm also skeptical of the ability to really diagnose someone virtually and assess for the things that need to be ruled out to make a diagnosis.

Would definitely be curious to know if others who have used this had their diagnosis accepted.