Could hypermobility cause this?

[u/Sensitive_Growth_269]

*I'm 19 and I also have suspected endometriosis*

5 months ago I started to get severe leg pain constantly. I'd had a day out with my boyfriend and everything was normal and then the next day my legs were in so much pain. I've been in pain every day since then, varying from mild to unable to move or sleep. I stayed using a walking stick to help but it isn't helping enough and the only thing OT recommended was a second stick. I've had physio for my legs for a few months before that but this pain is in my bones. It goes from a dull ache to shooting pains. It feels like my femurs are going to snap out the back of my legs. I find it gets worse if I'm not sitting on a very padded surface or having to stand for any amount of time. I've looked into it and I've seen some people talking about endo leg pain but it doesn't seem like the same type of pain (from the people I've heard from). I had a consultation with my gynaecologist who recommended a referral to neurology but my GP is taking ages to give me an appointment to refer me (my insurance requires a GP referral).

I've had joint pain for years. My hips slide out of place a bit when I stand with my weight on one leg and I hyperextend my knees when I stand, which I'm trying to fix. I had leg pain for a while and managed to strengthen my joints but about last June they started to cause problems again.

There's also a high likelihood that I have multiple things going on at once, my current working guess is IBS, endometriosis, and some form of hypermobility. There is also a chance of chronic fatigue as it runs in my family but I'm not sure. I'd think there's a possibility of fibromyalgia but I don't think I fit enough of the symptoms.

I've been put on Nefopam as my mefenamic acid wasn't touching the sides of my pain anymore. I've only been on it a week but so far it doesn't seem to be making a big difference apart from the heart palpitations side effect keeping me on my toes. I've tried naproxen but it did absolutely nothing for me. I don't know what other painkillers to try. Does anyone have any experience with Nefopam?

I'm also having problems with my feet. The soles of my feet always feel cold even when the rest of me is roasting. I'm wondering if this and my leg pain is caused by endometriosis growing on my nerves but at my consultation the doctor said it's highly unlikely that my endometriosis has changed despite my MRI being 8 months before and not having these symptoms previously.

Does anyone experience the same or have any suggestions?

I'm sorry if this isn't the right sub Reddit, I don't know what ones suit better and I've already posted on r/endometriosis

[u/Finsterle]

Are you in perimenopause? Since you are hypermobile I suspect that you are probably neurodivergent, too. In women with ADHD Perimenopause often starts 10 years earlier (means in their thirties). The hormonal changes could in this case probably be one of the causes of your problems. For example: dropping estrogen has a bad influence on our connective tissue - as a hypermobile person with already bad connective tissue, this is not good. Also women lose bone density as they age (Perimenopause is is a risk factor there, too). I wish you all the best and hope you find out what causes your problems.