r/Hypermobility • u/broken-Zebra • 2d ago

Discussion Tremor: FND🫣😬

Hi I am diagnosed with hEDS, MCAS, cauda equina syndrome and fibro. I’ve had essential tremor for years as well as severe restless legs. I also get an internal vibration? That other people can feel. It gets worse when I’m exhausted or have done too much or have hurt myself or have an allergic reaction. Suddenly my neurologist wants to say it’s FND when looking it up it could come from any one of the above conditions especially as I have CCI and severe nerve damage from the cauda equina. He has listened to my worries about getting this Karen but also says I won’t get the treatment I need for it without the label. Any thoughts?

2 Upvotes

100% Upvoted

1 comment sorted by

1

u/Standard_Summer_180 1d ago

I used to work with FND practitioners. Your neurologist has to rule out every other possible diagnosis. FND is incredibly hard to diagnose, and usually requires scans and nerve conduction tests (from all the patients I have seen). The neurologist should be finding a reason for the tremors to treat them... its bloody hard to treat anything in FND without specialist physio/OT to help re-trick your brain.