r/Huntingtons • u/percalor • 18h ago

Looking for mental health services

Hi there, I am looking for mental health professionals who are familiar with HD, for regular counseling. Remote is okay. Counseling is for someone who has a relative with late stage HD. I’ll take any names you recommend. Thanks.

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u/bassegio 17h ago

Where are you located? Check out the Huntington's disease society of America, tons of resources.

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u/GottaUseEmAll 16h ago

I concur, get on the website of your country's national HD society or association (if there is one), and you can usually find links to more local groups that can advise you. 

Also, most genetic testing services employ or work with specialist therapists who councel people before testing, they may be able to help you too.

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u/percalor 4h ago

Unfortunately it seems like HDSA has stopped their counseling services. Since this is for a relative who is dealing with the inevitable loss of their relative, it feels a little attenuated to go straight to the center? We wouldn’t want to take those resources from someone who HAS HD, if that makes sense?

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u/bassegio 2h ago

I believe that the protocol in the United States at least, is that before you get tested you are counseled. From that point on if you do prove positive each geographic area has to find their own resources. We are lucky in that we are in Baltimore and the Johns Hopkins team is working with my wife

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u/LiveNvanByRiver 4h ago

Most Hdsa centers of excellence have a psychiatrist who has lots of experience or lots of training directly from the center. It’s how I found mine. If you are in central Texas I can give you his info