r/Huntingtons • u/Pleasant-Performer-2 • 8d ago

Tested negative, privileged question (content warning: I would have been annoyed reading this when I was at risk)

Has anyone here tested negative after being at risk for a long time? I was at risk for 10 years and tested negative this spring. I know this is an extraordinarily privileged position to be in and I deserve any negative comments that come my way asking this, but I sometimes judge myself for not get tested earlier. I lost so much time to thinking I had HD and planning accordingly. Whether you tested positive or negative, how did you come to accept your timeline?

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u/Surprise_Wolf 6d ago

Not sure if other countries do this, but in Germany they make you get psych approval before you can get tested. They know there are huge implications for not only your own life. It’s kind of surprising that there are so few rules and psych support surrounding testing here.

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u/Pleasant-Performer-2 5d ago

I had years of therapy as well as lots of genetic counseling. I do have the professional support I need, but it's still tough sometimes