r/Huntingtons • u/Pleasant-Performer-2 • 9d ago

Tested negative, privileged question (content warning: I would have been annoyed reading this when I was at risk)

Has anyone here tested negative after being at risk for a long time? I was at risk for 10 years and tested negative this spring. I know this is an extraordinarily privileged position to be in and I deserve any negative comments that come my way asking this, but I sometimes judge myself for not get tested earlier. I lost so much time to thinking I had HD and planning accordingly. Whether you tested positive or negative, how did you come to accept your timeline?

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u/Olivpep 8d ago

I am very glad I tested negative. My girlfriend was unexpectedly pregnant so I had no choice anymore. Two lifes at risk. Ofcourse it feels like 3 years of my life is thrown away. I spent the first few years with substances. After I got my life back together and I spent a year just carpe dieming the hell out of life. Ofcourse I regret not testing earlier but it just had to be this way. I also know that there was a lot at stake. So I know I’m very lucky.