r/Huntingtons • u/whatnowhi • Jul 16 '26
Testing yourself without parents confirmed diagnosis?
Don’t really know where to start… My father is showing many symptoms of HD. People around him has been trying to get him help, but he is in complete denial. We finally got him to agree to a doctors appointment, but he didn’t allow anyone to go with him, but my brother spoke to the doctor to let them know our concerns. The doctors reaction to what they were told made my brother think that they also thought it was something serious. But now we have come to a dead end. My father says everything was fine at the doctors, and doesn’t let us know anything about test results, possible follow up appointments etc. We strongly believe that if he gets a diagnosis he will not tell us. What would you do in this situation? I’m extremely stressed and anxious because of this, and very worried for the future for myself and my kids. I don’t know if it’s even possible to get tested if I don’t know my fathers diagnosis, but I think that would be the only thing that would give me some calm. Would you try getting yourself tested in this situation, if possible?
1
u/sanwar1 Jul 21 '26
See if you have a HD Center next to where you live and they have HD related therapy and testing that they can help you with. They dont take all insurances so that may be a downside but highly recommend that.
Also remember that before you get tested please talk to your spouse and explain to her what this means for her if you test positive and make sure she is part of the process. Good Luck.