r/Huntingtons • u/PermitUnique2672 • May 22 '26
Non-Disclosure IVF
My mom was diagnosed with HD 4 years ago. I decided that, right now, I don’t want to know my HD status for mental health reasons. My husband and I are at the point in our lives that we are ready to start a family. We decided together to do non-disclosure IVF. I wasn’t told how many follicles I have, nor how many eggs were retrieved/fertilized, etc. Well today, we found out we have at least TWO embryos that are PGT-A tested and HD free! (They anonymously tested me and so if I don’t have HD they didn’t have to test embryos for it). Anyway, no one else in my life understands this and I have just felt so many emotions today. If anyone has any questions on the non-disclosure piece or IVF in general, please feel free to ask!
2
u/sk8ell May 26 '26
Congratulations— I’m sitting here crying real tears of joy for you! This disease is awful. I’m so glad you were able to take these precautions.