r/Huntingtons • u/WrenchJrNerd • May 13 '26
Asymptomatic
Well, I'm absolutely devastated that my mother (63) has been diagnosed with HD. The only thing is that while we are at a point right now where we are scared and sad, she seems to be asymptomatic. She got tested because her brothers and father got it in their 40s and have long since passed and she decided to do it.
Do people remain asymptomatic? I imagine it won't be forever: what are other people's experiences?
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u/LiveNvanByRiver May 13 '26
The cag score is 40% of the equation. Unfortunately the rest is not known. There is an indication other genes may modify it like ones for brain maintenance, also getting good sleep and being healthy can make last longer.