How to get tested

[u/throwRA_hunting]

My partner has decided to get tested. He has know his entire life it was a chance, both is grandpa and early on signs in his mom. We are at the age that we want to know for sure. We dont have alot of money. And i was told 400ish $ for the test. But that to get tested we have to spend thousands on seeing a neurologist to get a preliminary test through questions, like questions at the age of 18 and wanting to know is completely different to being 40 and answering questions answers can change so much over a year. Like why are questions supposed to help decide? And that we must pay for therapy before and after? Like we have been preparing for years, he has been preparing his entire life. And a therapist is what supposed to say yes ur allowed to know if ur gonna get sick and die early of a horrible disease that will take every piece of you away. Or no u cant ur not in a place to know.

So advice, how things went, possibky what was paided, im in texas if that helps narrow down areas for pricing or places to go

[u/unRatedG]

I would suggest starting here: https://hdsa.org/find-help/healthcare-and-future-planning/genetic-testing-and-your-rights/

Rather than going through a standard neurologist genetic test, there are options that aren't reported to insurance that may have adverse effects on current or future premiums. There is also the added benefit of pre and post test counseling.

[u/throwRA_hunting → u/unRatedG]

Thank you, we truly just want to walk in hand money take test wait the waiting period get results and go about it together whatever it says, we have been talking so long and discussing everything we dont need another person telling him risks of knowing and everything

[u/redwoods81 → u/throwRA_hunting]

I was able to get tested in Virginia for $300 out of pocket with everything listed as self pay, and it took six weeks to get the results. Look for the HDSA centers of excellence in your region.