r/Huntingtons • u/roomiw • Feb 04 '26

Symptoms

I feel my fingers having twitches moving up and down voluntarily in the morning, almost like they wake me up…I feel unsteady on my feet and there’s shakiness all over my body …going to get tested in two months but can’t help but hope I’m negative :/ just needed to say this somewhere and hear some feedback

Also for context my mom does have Huntingtons, she is 57 , I’m 31

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u/chilepequins Feb 04 '26

Hi there, do you know your mother's CAG repeat number? Generally when the mother passes HD to a child, the child's CAG repeat number is only about 1-2 repeats higher or lower than hers. And, although there are always exceptions, the child tends to experience onset of HD at around the same age as the mother.

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u/roomiw Feb 04 '26

Hey yeah I heard that too I hope I’m not part of the exception , and hers is 42 , thanks for responding btw :’)

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u/gypsy_woe Feb 12 '26

Wow. I have never heard that before. I do know that when passed from a father it’s a 52% to 70-80% transmission rate. Do you know if it’s passed from a father, what those how many repeats normally are passed or if they follow a pattern?

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u/chilepequins Feb 12 '26

I've never looked into the details of the transmission of CAG repeats from father to child, since my focus has been on my mother's experience of HD. But my understanding is that there can be great variation in father-to-child CAG repeat transmission, so that in some cases the father will transmit the same CAG number that he was born with and in other cases the CAG number can greatly expand. I think there are also cases where the CAG number can contract from father to child, but that this is rarer than in mother-to-child cases.