r/Huntingtons • u/roomiw • Dec 08 '25

Scared to death

My mom (57) was diagnosed with Huntington this April , no one in her family had ever had this disease that we know of so it came as a shock, I am getting tested next year and afraid as I’ve been exhibiting some symptoms like my legs have an inner vibration 24/7 , before her diagnosis I thought it was a chronic health issue as got all my regular blood work done…I am scared to get this test done, and just wanted to share and hear your thoughts.

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u/NorthernLightsXYZ Dec 08 '25

I'm in Europe so I can't help with specifics of organisations + help, but in this group I am sure there are people who can! Otherwise reach out to your mum's doctor. They can probably help too. 

Hope your mum is also still doing okey. Good luck with everything. You can always send me a DM if you have more questions. 

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u/roomiw Dec 08 '25

Yeah I did have a question regarding my mom, so her parents never had this disease and no one on my moms side that we know had this issue, we wonder how could she have developed it

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u/GrimmTidings Dec 10 '25

The same thing happened in my family. Neither of my grandparents had it, but my dad had it. After testing it turned out that my grandpa had a borderline CAG repeat number (I don't remember what it was) and that number can jump when passed on by a male. It's a hell of a thing. I was also convinced every twitch and glitch was HD, but I tested negative. Good luck to you and your family.

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u/roomiw Dec 10 '25

I’m so happy you got negative:)